Links for Studying Deafness,
Chronic Illness and Disability
There are thousands of deaf/Deaf,
chronic illness and disability sites on the WWW. These links should help you
get started! No endorsement is intended by inclusion here. (Please note also
that these links are to sites on the WWW, not to articles in Evergreen’s library
databases. To search the Evergreen databases, you must enter the TESC library’s
website, and then use specific database search tools.) The links below were
last updated in December, 2003 and added to in March 24, 2004. They are organized
into the following sections:
Abuse and Violence, and People with Disabilities
deaf . . . Deaf . . . Hard of Hearing
Definitions of Health and Wellness
Disparities in Health and Health Care
General Information and Link Lists
Literature (Fiction and Poetry) and Chronic Illness,
Disability, Deafness
Magazines and Other
Chronic Illness, Disability and deaf/Deaf Writing On-line
Mental Health and Mental Illness
Theatre, Performance
and deaf/Deaf, Chronic Illness, Disability
Crime
Victims with Disabilities
http://www.ojp.usdoj.gov/ovc/publications/factshts/disable.htm
This
factsheet, entitled “Working with Victims of Crime with Disabilities,” contains
useful information about how and why some people with disabilities are
perceived as vulnerable and made victims. (The report quotes an expert as
stating that "Children with any kind of disability are more than twice as
likely as nondisabled children to be physically abused and almost twice as
likely to be sexually abused.") From the Office for Victims of Crime,
Office of Justice Programs, U.S. Department of Justice.
Minnesota Center Against Violence and
Abuse
http://www.mincava.umn.edu/library/dv/#751
Links
to a variety of documents on the subject of violence and disability, including
a paper on domestic violence against disabled women from a non-English speaking
background. Hit the Disability button.
Women
and Girls with Disabilities
http://www.centerwomenpolicy.org/pubfiles/1999womenandgirlsdisabilities.pdf
Text
of a 1999 report written by Barbara Waxman Fiduccia and Leslie R. Wolfe, for
the Center for Women Policy Studies and Women & Philanthropy. The section
on violence against women and girls with disabilities begins on page 25.
Center
for Research on Women with Disabilities, Baylor College of Medicine
http://www.bcm.tmc.edu/crowd/abuse_women/abuse_women.html
Links
to information on several topics related to disabled women, including abuse.
VAWnet, a project of the National
Resource Center on Domestic Violence
http://www.vaw.umn.edu/vawnet/disab.htm
Statistics
and brief discussion regarding abuse of disabled women.
Violence
Against Disabled Women in Europe
http://www.independentliving.org/docs1/iglesiasetal1998.html
Americans
with Disabilities Act HOME PAGE, U.S. Department of Justice
http://www.usdoj.gov/crt/ada/adahom1.htm
A
wealth of official information and links relating to the ADA. Includes personal
and community stories, accounts of legal cases and settlement agreements,
frequently-asked questions and answers, implementation guidelines, text of the
law and regulations, etc.
http://www.ncd.gov/newsroom/publications/equality.html
Interesting historical and explanatory
information about the ADA, from the National Council on Disability. Note
especially the links to Appendix E:
Discrimination Diaries (some of the written testimony people submitted
during the ADA process, to document the discrimination against people with
disabilities) and Appendix F:
Key Concepts in the ADA, very useful for understanding the definitions,
assumptions and values underlying the ADA. The text of the law itself, as it
passed in 1990, can be accessed at http://www.usdoj.gov/crt/ada/pubs/ada.txt
http://www.accessiblesociety.org/topics/ada/adachangedmylife.htm
Stories (and links to more) about changes the ADA has made in people’s lives.
National Institute on Disability and Rehabilitation Research -- ADA Technical Assistance Program
http://www.adata.org/whatsada.html
Click on the links in the text for relatively brief discussions of the structure of the ADA (synopsis of major sections of the Act), the definition of disability in the ADA, and the history of civil rights law related to disabilities from the 1970s through signing of the ADA in 1990. (Note: If the link above takes you directly to the history page, click on “About the ADA” in the list of links to the left for a menu.)
Brief
descriptions of U.S. disability rights laws.
21st Century
Disability Think Tank on Overcoming the Most Significant Barriers to Independence
http://www.halftheplanet.org/departments/think_tank/table_of_contents.html
Report and issues papers from the first meeting of the 21st Century Disability Think Tank. The goal of the Think Tank is to create a roadmap for the disability civil rights movement and society to follow to achieve both total societal inclusion and enhanced pride and self-esteem in being members of and belonging to the community of disability.
Art and deaf/Deaf, Chronic
Illness, Disability
Art, Vision, & the Disordered Eye
http://www.psych.ucalgary.ca/pace/va-lab/AVDE-Website/default.html
This fascinating website provides information on selected visual conditions, and provides on artists who lived with each. Reproductions of artworks allow speculation on how visual changes may have impacted their art. Artists from Cassat (cataracts and diabetic retinopathy to Renoir (myopathy).
“Art, Disability & Expression” online exhibit from VSA arts http://www.vsarts.org/gallery/exhibits/disability/foreword.html
VSA Arts – An Organization and
On-line Gallery
http://www.vsarts.org/index.html
VSA arts is an International organization that creates learning opportunities through the arts for people with disabilities. [VSA stands for Vision, Strength, and Artistic Expression.] Jean Kennedy Smith founded VSA in 1974 as an affiliate of The John F. Kennedy Center for the Performing Arts.
Gateway Arts Gallery
http://www.gatewayarts.org/gallery/gallery.cfm?list=artists&S=20
Gateway Arts is a Brookline, Massachusetts program for 90-plus artists with developmental and psychiatric disorders.
National Institute of Art and
Disabilities (NIAD)
http://www.niadart.org/exhibits.htm
Gallery of images of art by CID
people.
Art about Deaf Experience
http://www.deafart.org/index.html
"This site is intended to be a resource
for anyone interested in Deaf
Art, particularly the category defined by
Deaf View/Image Art." Artwork with commentary by the artists.
http://wally.rit.edu/special/DeafArt3.html
Collection growing
out of a Deaf Art/Deaf Artists course at the National Technical
Institute for the Deaf at Rochester Institute of Technology.
"Images of Health and Disability" 2002
http://www3.who.int/icf/photo_gallery/index.htm
http://www.un.org/Photos/disabled.htm
United Nations photos of disabled people around the world.
Society for the
Arts in Healthcare
http://www.societyartshealthcare.org/
Click
on “Links to Arts in Healing Programs” for a list of arts and healing programs
in the U.S. The “Traveling Exhibits” button leads to several images of art
about illness.
Art and Healing
Network
http://artheals.org/index.html
A list of links to relevant
organizations, artists, books, videos, etc. – including resources for artists
working in this area.
The National Arts and Disability Center (NADC)
National information dissemination, technical assistance and referral center specializing in the field of arts and disability. The NADC is dedicated to promoting the full inclusion of children and adults with disabilities into the visual-, performing-, media, and literary-arts communities. At their links site, http://nadc.ucla.edu/links.htm , NADC provides connections to a number of sites featuring work by artists with disabilities and illness.
National
Disability Arts Forum (NDAF)
http://www.ndaf.org/menue.html
Organization
based in the United Kingdom, with a mission of “creating equality of
opportunity for disabled people in all aspects of the arts.”
http://www.navigatingthebody.com/navigation.html
Artist Susan Harmon gives “voice” to the experiences of
three women who live with fibromyalgia and additional illnesses. Take some time
here and click on everything – this is a large site, and innovative. Big
impact.
Cancer-related
Art
http://www.oncolink.org/coping/article.cfm?c=6&s=28&ss=102&id=561
Art from
The Art Program of the University of Pennsylvania Cancer Center. Children’s art from same program:
http://www.oncolink.org/coping/subsection.cfm?c=6&s=28&ss=62
(Note: These links may not work on Netscape web browsers.)
Art
from Visual AIDS
http://www.thebody.com/visualaids/index.html
From the site: “Visual AIDS strives to increase public awareness of AIDS through the
visual arts, creating programs of exhibitions, events and publications, and working in partnership with artists, galleries, museums and AIDS organizations.” Art by female members: http://www.thebody.com/features/women/visualaids/visualaids.html .
Fiction,
Film, Art Related to Medicine (and Illness and Disability) -- Annotated and
Searchable Lists
http://endeavor.med.nyu.edu/lit-med/lit-med-db/topview.html
Art,
film, and literature databases which list and contain reviews of works. Film
organized by title; art by artist; literature by keyword,
genre, individual
annotator, title, era,
author, and special author (female, male, physician, nurse, selected
ethnicities). Search feature. From the Arts and Medicine Project at the New
York University School of Medicine.
http://www.lareau.org/disgraph.html
Fairly large personal collection by Paul Lareau.
Note: See also the Art and deaf/Deaf, Chronic Illness, Disability section above.
http://ericec.org/faq/arts-x.html
From ERIC Clearinghouse on Disabilities
and Gifted Education
National
Coalition of Creative Arts Therapies Associations
Links to
American Art Therapy Association, American
Dance Therapy Association, American Music Therapy Association, American Society of Group Psychotherapy and Psychodrama, National Association for
Drama Therapy, and National Association of
Poetry Therapy. (Scroll down if the links at the top don’t work.)
Covering The Quality of Health Care: Chronic Illness
http://www.ahcj.umn.edu/qualityguide/resources3.html
Sources for journalists covering issues related to chronic
illness. Links to Organizations,
Experts, Web Sites, News Stories. From the Association of Health Care
Journalists. In another part of the site, the Association provides background
information about chronic illness and why it presents a “huge problem” and
“fascinating questions” in the US – check out http://www.ahcj.umn.edu/qualityguide/chapter3.html
. The index page for the Covering The
Quality of Health Care project as a whole is at http://www.ahcj.umn.edu/qualityguide/index.html
.
Ethnomed
http://www.fammed.washington.edu/predoctoral/clerkship/sg_ccr_cc.html
Brief primer about cultural competency,
for UW medical students on their Family Medicine Clerkship.
Checklists for Cultural Assessment (Queensland, Australia)
http://www.health.qld.gov.au/hssb/cultdiv/check/chk_list.pdf#Adobe
Queensland
[Australia] Health’s publication containing checklists and guides for working
with people from cultural and linguistic backgrounds other than one’s own.
Diversity and
cultural competency resources for
physicians-in-training, also useful for other healthcare professionals. The Cultural Competency in Medicine
Project in a Box link lists some interesting “areas of dissonance”
between people from different cultures, about one-third of the way down the
page.
http://www.xculture.org/index.cfm
Profiles of 12
cultural communities in relation to providing healthcare to their members.
Includes discussion of the specific community (for example, Cambodians) in the
Seattle area. Link to profiles near bottom of the site’s home page.
http://medicine.ucsf.edu/resources/guidelines/culture.html
List of links relevant to multicultural
and cross cultural issues in health care.
deaf . . . Deaf . . . Hard of Hearing
Note: See also the Art and deaf/Deaf, Chronic Illness, Disability section, above; and the Theatre, Performance and deaf/Deaf, Chronic Illness, Disability section, below.
Operated
by, of, and for the Deaf community, to advocate and promote improvement in the
quality of life for deaf and hard of hearing individuals.
WASA-SHHH is a
state-wide organization of people concerned about hearing loss who have
an interest in advocating for access, supporting other people with hearing
loss, and educating the public.
Good Links
http://www.mesquiteisd.org/mhs/library/clasproj.html
Nice set of links chosen by the school
librarians at Mesquite
High School (that would be in Mesquite, Texas),
to help students with class projects. Click on or scroll down to the section
for Hensley (ASL teacher).
National
Institute on Deafness and Other Communication Disorders
http://www.nidcd.nih.gov/index.asp
The
National Institute on Deafness and Other Communication Disorders (NIDCD), part
of the National Institutes of Health (NIH), is mandated to conduct and support
biomedical and behavioral research and research training in the normal and
disordered processes of hearing, balance, smell, taste, voice, speech, and
language.
http://www.rit.edu/~glk9638/history/index.htm
The Eugene and Inez Petersen collection. This is on the website of the National Technical Institute for the Deaf (NTID), the world's first and largest technological college for students who are deaf or hard of hearing (one of eight colleges of Rochester Institute of Technology).
http://clerccenter.gallaudet.edu/WorldAroundYou/interviews.html
From World Around You: A Magazine for
Deaf and Hard of Hearing Teens, published by
Gallaudet University through the Laurent
Clerc National Deaf Education Center.
A federation of 51 state association affiliates including the District of Columbia.
Focused on accessibility, civil rights,
and grassroots advocacy and
empowerment. See especially http://www.nad.org/infocenter/infotogo/dcc/terms.html
For a discussion of
what’s wrong with three terms many deaf/Deaf and hard of hearing people find
offensive.
http://www.deafchildren.org/home/home.html
National,
independent non-profit organization providing support, encouragement, and
information to families raising children who are deaf or hard of hearing.
Links and news updates.
http://depts.washington.edu/pfes/pdf/DeafCultureClueSept03.pdf
http://depts.washington.edu/pfes/pdf/HardOfHearingCultureClueSept03.pdf
History through Deaf Eyes
http://depts.gallaudet.edu/deafeyes/
Website for a touring exhibt o funded in part by the
National Endowment for the Humanities. Site features
historic photographs.
Timelines
of deaf/Deaf History
http://www.pbs.org/wnet/soundandfury/culture/deafhistory.html
PBS Sound and Fury website
http://www.aslinfo.com/trivia.cfm
ASLInfo.Com timeline
http://members.aol.com/deafcultureinfo/deaf_history.htm
A personal web page about deafness
“What
is the ADA: Definition of Disability”
http://www.adata.org/whatsada-definition.html
Backgrounder from the National Institute on Disability and Rehabilitation Research.
http://www.accessiblesociety.org/topics/demographics-identity/dkaplanpaper.htm
http://www.adata.org/whatsada-definition.html
National (information) Clearinghouse on Education and
Training for People with Disabilities
A recap of the World Health Organization’s changing International Classification of Functioning and Disability (ICIDH-2), at the NCET site [National (information) Clearinghouse on Education and Training for people with disabilities], located in Australia. http://www.deakin.edu.au/tedca/ncet/information/resources/icidh.html
WHO’s International Classification of Functioning website is at http://www3.who.int/icf/icftemplate.cfm
http://www.ilru.org/healthwellness/healthinfo/index.html#Physical
FACT
SHEET: Health, Wellness, & Disability:
Perspectives of
Persons with Disability, at The
Institute for Rehabilitation and Research (TIRR) website. Other useful links,
too.
(Note: A slightly different version of the fact sheet can
be found at http://www.healthwellness.org/rrtclibrary/publications/library_study1brief.htm
if you are having trouble connecting to the ilru link.)
Health and Wellness links from Rehabilitation Research and Training
Center (RRTC) on Health and Wellness
http://www.healthwellness.org/sitemap.htm
For
links on health and wellness for people with disabilities, first click on “Site
Map” (upper right corner of screen), and then scroll down to Health
Information, Definition of Health and Wellness” for links.
Healthy People 2010, Chapter 6: Disability and Secondary Conditions
http://www.healthypeople.gov/Document/HTML/Volume1/06Disability.htm
Healthy
People 2010 is the third
set of 10-year national health objectives overseen by the U.S. Department of
Health and Human Services (HHS). The report as a whole contains a rich set of
data and information about the state of US residents’ health, in a useful
format. This chapter focuses on disabled people’s health, well-being, and
participation in life activities. Links at the bottom of this web page take you
to the rest of the report.
Health
Disparities Encountered by Persons with Disabilities
http://www.cds.hawaii.edu/DSQ/_articles_pdf/2003/Winter/dsq_2003_Winter_06.pdf
Disabilities
Studies Quarterly article
on discrimination in health care relative to disabled persons.
Chronic
Disease Notes & Reports
http://www.cdc.gov/nccdphp/cdnr.htm
Links to articles on health-related quality of life at this website for the newsletter of the National Center for Chronic Disease Prevention and Health Promotion. See especially the
Winter 2003: Volume 16, Number 1 issue.
Health-Related Quality of Life
Health-Related Quality of Life website at the National
Center for Chronic Disease Prevention and Health Promotion
The Concept of Wellness
University at Buffalo, The State
University of New York
http://www.livingwell.buffalo.edu/well.shtml
Thought-provoking
ideas about various aspects of wellness.
“Defining
Impairment and Disability: Issues At Stake” (Mike Oliver)
http://www.leeds.ac.uk/disability-studies/archiveuk/Oliver/exploring%20divide%20ch3.pdf
Chapter 3 in Exploring
the Divide, edited by Colin Barnes and Geof Mercer, Leeds: The Disability
Press, 1996, pp.29 -54.
http://www.axess.se/english/archive/2003/nr5/currentissue/essay.php
Interesting essay
(from Axess Magazine, a Swedish liberal arts and social science
publication on-line in English) about the complexities of power inherent in
defining/naming/diagnosing an illness. From Issue 5, 2003.
The Health of Washington State
http://www.doh.wa.gov/HWS/CD.shtm
http://mchneighborhood.ichp.edu/wagenetics/Disability12pt.pdf
Thirty-six page report from the Washington State Department
of Health, dated January 2001, One in five
Washingtonians has a disability or sensory limitation. (The same report is
available in 14 point type at http://mchneighborhood.ichp.edu/wagenetics/Disability14pt.pdf
.)
http://healthlinks.washington.edu/nwcphp/wph2000/disability.pdf
Useful one-page summary of the
status of people with disabilities in Washington State, by Susan Kinne. Published in
Washington Public Health, Fall 2000.
http://apps.nccd.cdc.gov/BurdenBook/DeathCause.asp?state=wa
Brief
overview at the National
Center for Chronic Disease Prevention and Health Promotion website. Focus on
heart disease, stoke, cancer and diabetes.
http://depts.washington.edu/cdpr/index.html
Research
and training center at the University of Washington. Site has descriptions of
current projects, a few links, and reports (mostly focused on developmental
disabilities).
Disparities in Health and
Health Care
Public Health - Seattle & King County Reports http://www.metrokc.gov/health/phnr/eapd/reports/pubindex.htm#reports
Scroll down to the “Ethnicity and Health” section, in particular.
http://www.doh.wa.gov/sboh/Pubs/2001HDReport.pdf
Final Report on Health Disparities, Washington State Board of Health, May 2001. (Be patient – it takes quite awhile to come up.)
Chronic
Disease Notes & Reports
http://www.cdc.gov/nccdphp/cdnr.htm
Website for this
newsletter of the National Center for Chronic Disease Prevention and Health
Promotion has links to articles on health disparities. See especially the Fall
2002: Volume 15, Number 3 and Spring/Summer 2002: Volume 15, Number 2 issues
for recent information.
Social Determinants of Health
http://www.doh.wa.gov/HWS/doc/RPF/RPF_Soc.doc
Overview of social conditions that
affect health, from The Health of Washington State, Washington State
Department of Health, followed by a brief discussion on interventions
(07/25/2002).
http://www.nap.edu/books/030908265X/html/
Unequal
Treatment: Confronting Racial and Ethnic Disparities in Health Care is a comprehensive study of health care
disparities in the United States.
Mental Health: Culture, Race, and Ethnicity -- A Supplement to Mental Health: A Report of
the Surgeon General
http://www.surgeongeneral.gov/library/mentalhealth/cre/default.asp
Report; links;
bibliography; fact sheets on mental health in US African Americans, Asian
Americans/Pacific Islanders, Latinos/Hispanic Americans, Native American
Indians
Covering The Quality of Health Care: Disparities
http://www.ahcj.umn.edu/qualityguide/chapter7.html
Good short backgrounder to health care disparities in the US. This is information provided for journalists covering disparities, by the Association of Health Care Journalists. Be sure to click on the “Resources” button for links to a lot more information. The index page for the Covering The Quality of Health Care project as a whole is at http://www.ahcj.umn.edu/qualityguide/index.html .
Office of Minority Health, Centers for Disease Control and Prevention http://www.cdc.gov/omh/
Census data, health information and more for eleven racial groups. (Click on the Office of Minority Health button, and then on the Racial & Ethnic Minority Populations button.) The Centers for Disease Control and Prevention is part of the US Department of Health and Human Services.
Links
to related statistical information, publications, and issues of two
newsletters, Closing the Gap and HIV Impact.
http://www.kff.org/minorityhealth/index.cfm
http://www.kff.org/minorityhealth/disparities.cfm
Kaiser Family Foundation reports related to healthcare
disparities, including a survey of US physicians. (Note: This URL may not work on a Netscape web brower.)
Healthcare and
Health Coverage for People With Disabilities
http://www.kff.org/medicare/121203package.cfm
Kaiser Family Foundation report and other information related to disabled people and healthcare.
For even more related information, including profiles and results of focus
groups with disabled people: http://www.kff.org/medicare/disabilities.cfm
. (Note: These URLs may not work on a Netscape web brower.)
Health
Disparities Encountered by Persons with Disabilities
http://www.cds.hawaii.edu/DSQ/_articles_pdf/2003/Winter/dsq_2003_Winter_06.pdf
Disabilities
Studies Quarterly article
on discrimination in health care relative to disabled persons.
http://www.surgeongeneral.gov/topics/mentalretardation/
Report from the US Surgeon General's Conference on Health Disparities and Mental Retardation held in 2001, CLOSING THE GAP: A National Blueprint to Improve the Health of Persons with Mental Retardation.
Health Disparities Encountered by Lesbian
Women
http://www.cdc.gov/nccdphp/cdnr/cdnr_fall0206.htm
Link to an overview article “Lesbians
Face Many Barriers to Good Health Care “in Chronic Disease Notes &
Reports, Volume 15, Number 3, Fall 2002 (Centers for Disease Control).
See the Film page of this website
for lists of informational and CID culture videos available at TESC and the
Timberline Regional Library.
Fiction,
Film, Art Related to Medicine (and Illness and Disability) -- Annotated and
Searchable Lists
http://endeavor.med.nyu.edu/lit-med/lit-med-db/topview.html
Art,
film, and literature databases which list and contain reviews of works. Film
organized by title; art by artist; literature by keyword,
genre, individual
annotator, title, era,
author, selected ethnicities. Search feature. From the Arts and Medicine
Project at the New York University School of Medicine.
disabilityfilms.co.uk
http://www.disabilityfilms.co.uk/
This site presents a detailed list of 2,500 feature films which
involve in one way or another various disabilities. Organized
by disability and by film title.
Disability Studies On-line Magazine
Recommended Videos
http://www.disabilitystudies.com/videos.htm
List
of some non-mainstream films or videos dealing with disability issues, compiled
by Carrie
Sandahl.
http://www.accessiblesociety.org/index.shtml
http://www.accessiblesociety.org/topics/topicsindex.shtml (topic index to links)
Funded
by the National Institute on Disability and Rehabilitation Research, The Center
for An Accessible Society is a national organization designed to focus public
attention on disability and independent living issues by disseminating
information developed through NIDRR-funded research to promote independent
living.
National
Council on Disability (NCD)
The
National Council on Disability (NCD) is an independent federal agency which
takes a civil rights and watchdog approach in making recommendations to the
President and Congress on issues affecting Americans with disabilities. This
site links you to NCD reports, and to “newsroom” and “what’s new” features that
are useful in keeping up on some of what’s being said and what’s happening in
the national public policy arena, related to disabilities.
Cornell University Rehabilitation
Research and Training Center
http://www.ilr.cornell.edu/ped/dep/rrtc.html
Home
page for the Rehabilitation Research and Training Center for Economic Research
on Employment Policy for Persons with Disabilities (RRTC). Information, links
and some statistics related to employment and disability.
DisabilityInfo.gov
http://www.disabilityinfo.gov/
Bills
itself as “the
comprehensive Federal website of disability-related government resources.”
Disability Information
http://www.abilityinfo.com/index.html
Medline Plus (US National Library of
Medicine and National Institutes of Health)
http://www.nlm.nih.gov/medlineplus/disabilitiesgeneral.html
Links
to a range of interesting information.
Disability Resources on the Internet
http://www.disabilityresources.org/index.html
Awesome
index to on-line resources from Disability Resources.
Dimagine
Link Page
http://www.dimagine.com/page8.html
A nice set of links from David Pitonyak, Ph.D., who has a consultation and training practice on disability issues.
Links and news updates.
Good deaf/Deaf Links
http://www.mesquiteisd.org/mhs/library/clasproj.html
Nice basic set of links chosen by
the school librarians at Mesquite High School (that would be in Mesquite, Texas), to help students with class projects. Click on or scroll
down to the section for Hensley (ASL
teacher).
http://www.inclusiondaily.com/central/advocacy.htm
From INCLUSION DAILY EXPRESS, a subscription disability news service. For their links on additional subjects, see http://www.inclusiondaily.com/links.htm .
Factsheets, guidelines, and more. The National
Center on Physical Activity and Disability is part of the Department of
Disability and Human Development in the College of Applied Health Sciences at
the University of Illinois at Chicago.
Health
General Information
http://www.mskcc.org/mskcc/html/11570.cfm
This website provides information about using herbs, botanicals and other products in healthcare. Clicking on the button on the right of the page, under “Other resources” will take you to links to complementary and alternative medicine websites.
National Center for
Complementary and Alternative Medicine
Established by Congress in 1998 as one of the 27 institutes and centers that make up the National Institutes of Health (NIH). Research reports, alerts and advisories, treatment information.
http://www.disabilityhistory.org/exhibits.html
A community history project providing timelines, on-line exhibits, bibliographies and more.
http://www.disabilitymuseum.org/
Artifacts from the past.
http://www.disabilityresources.org/HISTORY.html
Links from Disability Resources Monthly.
Beyond Affliction: The Disability History Project
http://www.npr.org/programs/disability/
NPR’s four-hour documentary radio series about the shared
experience of people with disabilities and their families since the beginning
of the 19th century. This Web site includes excerpts, as well as many of the
primary source documents - extended interviews, images, and texts- from which
the on-air programs were developed.
History through Deaf Eyes
http://depts.gallaudet.edu/deafeyes/
Website for a touring exhibt o funded in part by the National
Endowment for the Humanities. Site features historic
photographs.
TIMELINES
OF DEAF/DEAF HISTORY
http://www.pbs.org/wnet/soundandfury/culture/deafhistory.html
PBS Sound and Fury website
http://www.aslinfo.com/trivia.cfm
ASLInfo.Com timeline
http://members.aol.com/deafcultureinfo/deaf_history.htm
A personal web page about deafness.
TIMELINES OF HISTORY OF MENTAL HEALTH
Mental Health
History Timeline
http://www.mdx.ac.uk/www/study/mhhtim.htm
Compiled by Andrew Roberts, and posted on his personal web page.
Mental Healthcare
in America: A History of Caring
(1773-2002, US)
http://www.nccbh.org/images/learn/ncnews/NCnews-05-03.pdf
Timeline of the
community mental health movement, from the National Council for Community Behavioral Healthcare. (Pages 12-16)
History of Western State Hospital (Tacoma)
http://communities.southsound.com/media/documents/522.2.doc
Brief timeline from
the Western
State Hospital Historic Society.
TIMELINES OF
DISABILITY HISTORY
Disability
History Timeline
http://www.disabilityhistory.org/timeline_new.html
From the Disability Social History Project.
International Independent Living Timeline
http://www.ilru.org/summit/3-international_il_timeline.htm (timeline)
http://www.ilru.org/summit/4-analysis_of_the_timeline.htm
(introduction)
Timeline by
disability activist and author Anne Finger. From the introductory narrative: "Independent living has been defined
as a social movement, which promotes the philosophy of self-organization,
self-help, civil rights, and improved quality of daily life for people with
disabilities."
A Chronology of
the Disability Rights Movements
http://www.sfsu.edu/%7Ehrdpu/chron.htm
From the San
Francisco State University Disability Programs and Resource Center.
TIMELINES OF GENERAL HEALTHCARE HISTORY
Healthcare Timeline (1900s to 2000s, US)
http://www.pbs.org/healthcarecrisis/history.htm
Part of the materials from the PBS special “Healthcare Crisis: Who’s at Risk?” (Special first aired in 2000.)
Healthcare: A Timeline (1947 to 2002, Canada)
http://popups.ctv.ca/content/publish/popups/healthcare/timeline/timeline.html
From CTV.
Trends
in Healthcare in the US (1700 – 1860; 1860 – 1960; 1960 – 21st
Century)
http://classes.kumc.edu/sah/heim661/module1/timelineV2.swf
Part of an assignment in Karl J. Koob’s course Management Principles in Health Care, at the University of Kansas Medical Center
School of Allied Health.
A Brief History of the Patient Safety Movement
http://www.ahcj.umn.edu/qualityguide/timeline.html
Part of the Covering The Quality of Health Care project from the Association of Health Care Journalists.
Perspectives in Healthcare Technology Timeline (pre-18th Century, 18th Century, 19th Century, 20th Century; international)
http://www.geocities.com/kbeb3234/time.htm
An on-going project compiled by students in the course “Perspectives in Healthcare Technology,” Biomedical Engineering Programme, University of Malaya, Kuala Lumpur, Malaysia. From the introduction: “The main objective is to document every important milestones and inventions in the history of medicine since the beginning of time, and also to include any important world events occurring at the time.” Notes contain additional details for some entries.
HISTORY OF MEDICINE AND MEDICAL TECHNOLOGY TIMELINES
Medicine and Madison Avenue
http://scriptorium.lib.duke.edu/mma/timeline.html
Timeline from the
National Humanities Center chronicles dedical
discovery and disease trends, and the regulation of advertising and drugs.
"Combined Medical Timeline”
Detailed timeline from the Wellcome Trust, with articles and illustrations for many entries. Begins in 2500 BC, and covers birth, death, drugs, hospitals, plagues, surgery and technology.
Perspectives in Healthcare Technology Timeline (pre-18th Century, 18th Century, 19th Century, 20th Century; international)
http://www.geocities.com/kbeb3234/time.htm
An on-going project compiled by students in the course “Perspectives in Healthcare Technology,” Biomedical Engineering Programme, University of Malaya, Kuala Lumpur, Malaysia. From the introduction: “The main objective is to document every important milestones and inventions in the history of medicine since the beginning of time, and also to include any important world events occurring at the time.” Notes contain additional details for some entries.
dizABLED
John Callahan
http://www.animationworks.com.au/quads/johncallahan_main.htm
Callahan
in the author of Don’t Worry, He Won’t Get Far on Foot, an account of
his life with quadriplegia, and the creator of irreverent cartoons. Not for the faint
of heart.
British Broadcasting Corporation’s Disability Website
http://www.bbc.co.uk/ouch/about/
From the “About”
page: “Ouch! is the BBC's new website that reflects life as a disabled person.
It's not here as a resource or a help shop; it's more about life, living,
creativity, community, humour and the wider view. . . . Our main aim is to
reflect experiences, thoughts and give alternative slants on all things big and
small that are important to disabled people.”
Fiction,
Film, Art Related to Medicine (and Deafness, Illness and Disability) --
Annotated and Searchable Lists
http://endeavor.med.nyu.edu/lit-med/lit-med-db/topview.html
Literature,
art, and film databases that list and contain reviews of works. Good search
feature. From the Arts and Medicine Project at the New York University School
of Medicine.
Literature and
Medicine
http://www.evergreen.edu/library/catalog/orSubject.htm
(Evergreen online references)
Scholarly journal available to
Evergreen staff, students and faculty through two of the Evergreen library’s
online databases: Project Muse (Literature and Medicine articles from 1995) and
Proquest Direct (from Oct. 2002). Literary criticism.
Roster
of Physician Writers
http://hometown.aol.com/dbryantmd/index.html?f=fs
List of licensed physicians (includes osteopaths) in US and elsewhere who have published at least one book of creative writing (essays, poetry, fiction, drama). Name, brief bio, list of works. Compiled by Daniel C. Bryant, M.D.
http://www.ragged-edge-mag.com/
Ragged Edge magazine continues the award-winning
periodical, The Disability Rag. From the website: “We cover the
disability experience in America -- what it means to be a crip living at the
start of the 21st century.” Complete articles and essays on-line.
The Tactile Mind
Press
From the website’s “About” page: The Tactile Mind Press publishes literature by signers (Deaf and non-Deaf alike) in both English (in print) and American Sign Language (on digital video).” To subscribe to the free e-zine: http://www.thetactilemind.com/weekly/index.html
http://www.newmobility.com/magazine.cfm
Website
contains short selections from the print magazine. Written by and
for wheelchair users, New Mobility provides a forum for sharing life
experience, for learning what really works in daily life, for networking and
becoming part of a community.
An electronic magazine for people with spinal cord injury. Click on the logo at upper left.
http://www.disabilitynow.org.uk/
A leading disability site in the United Kingdom, with news and feature articles, advice, adverts, links, an archive and a chat forum
http://www.disabilityworld.org/index.htm
Disability World is a web-zine dedicated to advancing an exchange of information and research about the international independent living movement of people with disabilities. Spanish version available via a link.
The on-line site for the edgy Mouth Magazine, “voice of the disability nation.” Subscribe to the print edition to get the full flavor – the on-line site is just a sample, but there is quite a bit of good stuff here.
British Broadcasting Corporation’s Disability Website
http://www.bbc.co.uk/ouch/about/
From the “About”
page: “Ouch! is the BBC's new website that reflects life as a disabled person.
It's not here as a resource or a help shop; it's more about life, living,
creativity, community, humour and the wider view. . . . Our main aim is to
reflect experiences, thoughts and give alternative slants on all things big and
small that are important to disabled people.”
http://www.cripcommentary.com/
Columns, articles, poetry.
Mental Health
and Mental Illness
National Mental Health Information Center
Sponsored by The Substance Abuse and Mental Health Services Administration (SAMHSA), in the US Department of Health and Human Services. Fact sheets for lay readers at http://www.nimh.nih.gov/publicat/index.cfm .
National Institute of Mental Health
http://www.nimh.nih.gov/home.cfm
National Institute of Mental Health (NIMH), part of the US Department of Health and Human Services.
US Surgeon General’s Report on Mental Health
http://www.surgeongeneral.gov/Library/MentalHealth/home.html
U.S. Department of Health and Human Services. Mental Health: A Report of the Surgeon General. Rockville, MD: U.S. Department of Health and Human Services, Substance Abuse and Mental Health Services Administration, Center for Mental Health Services, National Institutes of Health, National Institute of Mental Health, 1999.
Covering The Quality of Health Care: Mental Illness
http://www.ahcj.umn.edu/qualityguide/chapter8.html
Sources for journalists covering issues related to mental illness, from the Association of Health Care Journalists. Be sure to click on the “resources” button for links to more information. The index page for the Covering The Quality of Health Care project as a whole is at http://www.ahcj.umn.edu/qualityguide/index.html .
American Psychiatric Association Backgrounders
http://www.psych.org/public_info/lets_talk/talk_facts.cfm
American Psychiatric Association
Basic background on mental illness in general, and on specific mental illnesses, including treatment.
Mental
Health
http://www.cdc.gov/mentalhealth/
Website for the Mental Health Work Group at the National
Center for Chronic Disease Prevention and Health Promotion. Links to statistics, organizations (by
state), reports (including one on the psychological effects of September 11th
attacks on residents of New York), FAQ.
http://www.health.state.nm.us/dhp/Courtesies.pdf
Four-page list
organized by disability. From the New Mexico Disability and Health Program, New
Mexico Department of Health (originally from Indiana Governor's Planning
Council for People with Disabilities).
http://depts.washington.edu/pfes/pdf/DeafCultureClueSept03.pdf
http://depts.washington.edu/pfes/pdf/HardOfHearingCultureClueSept03.pdf
These excellent tip sheets were developed at University of
Washington Medical Center.
Coming to Terms with Disabilities
A compilation of vocabulary relating to
visible and non-visible disabilities by the New York State Senate Select
Committee on the Disabled.
PEOPLE FIRST - Communicating
with and about People with Disabilities
http://www.health.state.ny.us/nysdoh/promo/people.htm
Includes
a list of terms and descriptions to avoid, as well as those preferred . From
the New York State Department of Health.
People with Disabilities
http://dawn.thot.net/disability_guide.html
Information,
terminology, etiquette, issues, etc., relevant to people in eight categories of
disability. The Canadian Centre on Disability Studies, at the Disabled Women’s
Network Ontario website.
Suggestions for Communicating, Working With And Writing
about People with Disabilities
http://www.iowaartscouncil.org/info/info18.htm
From the Iowa Arts Council.
Includes the “Ten Commandments
of Etiquette for Communicating with People with Disabilities."
Deaf
and Hard of Hearing
http://www.nad.org/infocenter/infotogo/dcc/terms.html
Discussion of what’s
wrong with three terms many deaf/Deaf and hard of hearing people find
offensive.
Trace Research & Development
Center, College of Engineering, University of Wisconsin-Madison
Tips
and tools for making accessible printed documents, web sites and consumer
products.
The Education on Disability and Gender
Equity (EDGE) website introduces students to core high school curriculum
concepts using examples that educate and inform them about disability and
gender.
British Broadcasting Corporation’s Disability Website
http://www.bbc.co.uk/ouch/about/
From the “About”
page: “Ouch! is the BBC's new website that reflects life as a disabled person.
It's not here as a resource or a help shop; it's more about life, living,
creativity, community, humour and the wider view. . . . Our main aim is to
reflect experiences, thoughts and give alternative slants on all things big and
small that are important to disabled people.”
A
position paper and review of information dated September 15, 2003, from
the National Council on Disability (“an independent federal agency making recommendations to the President and Congress on issues affecting Americans with disabilities”).
National Center for Education Statistics,
US Department of Education
http://nces.ed.gov/surveys/npsas/table_library/
Tables of data on numbers of US undergraduate and graduate students who self-report disabilities and health problems. Once in the NCES Table Library, click on “View Available Data Tables,” then on “Student,” then on “Miscellaneous.” In this screen, use the toggle switch and choose “Disabilities”. Hit “Go.” There is also a somewhat outdated analysis report “Students with Disabilities in Postsecondary Education” at this website, at http://nces.ed.gov/pubsearch/pubsinfo.asp?pubid=1999187 , and a report “Deaf and Hard of Hearing Students in Postsecondary Education” (dated March1994) at http://nces.ed.gov/pubsearch/pubsinfo.asp?pubid=94394
On A Roll
http://www.ican.com/channels/on_a_roll/index.cfm
Talk radio on life and disability. Some recent shows are archived at
http://www.uppity-disability.net/roll/index.html .
Radio Independent Living and Disability Radio Worldwide
http://www.independentliving.org/radio/index.html
This website has information about Radio Independent Living, and a link to Disability
Radio Worldwide. According to information posted there, Disability Radio Worldwide is broadcast to
over 100 countries from Costa Rica via Radio for Peace International on
shortwave frequencies, and sells taped copies of past programs; catalog at http://www.independentliving.org/disabilityradio/drw2.html
.
Phenomenology
Online
http://www.phenomenologyonline.com
Comprehensive
materials related to phenomenology research. Also,
phenomenological
Descriptions of experience related to CIDD at
http://www.phenomenologyonline.com/articles/textorium.html
and
http://www.phenomenologyonline.com/articles/gagnon.html .
The Problem of
Meaning in Literature
http://www.brocku.ca/english/jlye/meaning.html
Thoughts from John Lye,
English prof at Brock University.
Narrative
Psychology
http://maple.lemoyne.edu/~hevern/narpsych.html
Discussion and links, from Vincent W. Hevern, SJ, Ph.D, Psychology Department, Le Moyne College.
The Witnessing Project: From Passive Witnessing to Effective Action
http://www.witnessingproject.org/index.html
The site itself, including the Witnessing Positions (click on “resources” and then on “four witness positions.”) And you may want to explore the links to some interesting sites – click the “resources” button!)
The Compassionate
Listening Project (based in Indianola, Washington)
http://www.compassionatelistening.org/index.html
The Center for Narrative Studies
International
Institute on Personal Meaning
http://www.meaning.ca/index.html
Behavioral Risk Factor Surveillance
System Data
http://www.cdc.gov/brfss/index.htm
Health risk information on selected
parameters, by state. (Also has data for three metropolitan areas in
Washington: Tacoma,
Seattle-Bellevue-Everett, and Portland-Vancouver-Beaverton, OR-WA.)
Disability
Statistics Center – University of California, San Francisco
Statistics
and studies relevant to disability in the US, and useful short discussions
about finding disability data on the
WWW, and how to use disability data. Also links to the major statistical data sources on disability, and to a
variety of Center reports on the status of people with disabilities in the US.
(One example of the reports: Improved Employment Opportunities for People with Disabilities (May 2003), available through the website, or directly at http://dsc.ucsf.edu/pdf/report17.pdf .)
U.S. Census Surveys Reports and Data on Disability
http://www.census.gov/hhes/www/disability.html
Includes employment,
earnings, and disability information, and demographic information.
http://www.census.gov/hhes/www/disable/disabcps.html
Census disability-related information in tables
http://www.healthwellness.org/healthinfo/healthwelldef/healthinfo_frcensus.htm
Brief synopsis of recent U.S. Census findings on disability, on a Rehabilitation Research and Training Center (RRTC) website in Ohio.
The
Center for An Accessible Society
http://www.accessiblesociety.org/topics/demographics-identity/nidrr-lrp-defs.htm#statlinks
At
bottom of page, links to chartbooks containing charts, graphs and information
on these topics:
Chartbook on
Women and Disability in the United States Last updated: 07/21/99
Chartbook on
Work and Disability in the United States 1998
Chartbook
on Disability in the United States 1996
National
Center for Health Statistics – Fast Stats on Disability
http://www.cdc.gov/nchs/fastats/disable.htm
National Center for Health Statistics – Fast Stats on Minority Health
http://www.cdc.gov/nchs/fastats/minority.htm
National
Center for Health Statistics – Summary of Notifiable Diseases http://www2.cdc.gov/mmwr/summary.html
Notifiable diseases are those healthcare personnel must report to
local health departments, because the diseases are contagious or indicators of
other significant threats to public health. There are links here to annual
reports.
U.S. Centers for Disease Control -- Morbidity
and Mortality Weekly Report (MMWR)
http://www.cdc.gov/mmwr/preview/mmwrhtml/mm5007a3.htm
U.S. Centers for
Disease Control -- Morbidity Tables
http://www.cdc.gov/mmwr/distrnds.html
Data for selected diseases reported by
the 50 states, New York City, the District of Columbia, and the U.S.
territories are collated and published weekly in the Morbidity and Mortality
Weekly Report (MMWR).
U.S. Centers for Disease Control -- National Center for Chronic Disease
Prevention and Health Promotion
http://www.cdc.gov/nccdphp/overview.htm
Overview and some stats on chronic disease in the US, with links to state-level information on specific diseases, funding, etc., and links to other publications on chronic disease. Among these links are issues of Chronic Disease Notes & Reports, the National Center’s newsletter for health professionals, at http://www.cdc.gov/nccdphp/cdnr.htm , and various publications and reports on chronic disease, at http://www.cdc.gov/nccdphp/publicat.htm .
National Institute of Mental Health
http://www.nimh.nih.gov/publicat/stats.cfm
Statistics page of the National Institute of Mental Health (NIMH), part of the US Department of Health and Human Services.
Mental Health: A Report of the Surgeon General
http://www.surgeongeneral.gov/Library/MentalHealth/home.html
U.S.
Department of Health and Human Services. Mental Health: A Report of the
Surgeon General. Rockville, MD: U.S. Department of Health and Human
Services, 1999. (See especially Chapter 2, the section on Epidemiology of
Mental Illness, at http://www.surgeongeneral.gov/Library/MentalHealth/chapter2/sec2_1.html
)
United Nations Statistics Division – Reports on
Disability
http://unstats.un.org/unsd/disability/default.asp
World
Health Organization Statistical Information
http://www.who.int/research/en/
Statistics
on disease and death around the world.
World Health Organization Statistical
Information System (WHOSIS)
http://www3.who.int/whosis/menu.cfm
The WHO Statistical Information System is
a guide to health and health-related epidemiological and statistical
information available from the World Health Organization, and elsewhere.
Personal Documentary Center
http://maple.lemoyne.edu/~hevern/pdc/index.html
Scroll down to
“Personal Documents and Connections” for personal stories about disability and
rehab (includes spinal cord injury and brain injury), and mental and physical
illness. Site put together by Vincent W. Hevern, a psychology professor at Le
Moyne College, Syracuse, NY.
BBC Radio 1
http://www.bbc.co.uk/radio1/onelife/health/index.shtml?healthy_mind#topics
Webpage focused on health, illness and disability. Click on things – stories appear in various places, usually identified by the words “Real Life.” AIDS story at http://www.bbc.co.uk/radio1/onelife/health/sex/hiv_tom.shtml .
tell-us-your-story.com
http://www.tell-us-your-story.com/
From the home page: “tell-us-your-story.com
is a disability discussion forum for those of us with disabilities as
well as our parents, friends, spouses, caregivers, co-workers.” Lots of stories here!
Theatre, Performance and deaf/Deaf,
Chronic Illness, Disability
The
DisAbility Project
http://www.disabilityproject.com/
The
DisAbility Project is an ensemble engaging in conversation, writing,
sound, movement and theatrical exercises to develop and perform
material
around the culture of disability.
National
Theatre of the Deaf
Theatre
company’s web page, with additional Deaf culture links at
http://www.ntd.org/about_resources.htm
.
Timelines
See the History and Timelines section.
URL for this webpage http://academic.evergreen.edu/curricular/disabilityandillness/
Links
last updated on December 11, 2003, and added to on March 24, 2004.