Winter
2001-2002
THIS
THE FIRST TENTATIVE VERSION OF A COURSE WEBPAGE. THIS QUARTER, IT CONTAINS
LINKS TO SOME USEFUL BACKGROUND SITES (SHOWN FIRST BELOW). THEN THE LINKS FOR
EACH WEEK, INCLUDING ASSIGNED, OPTIONAL, AND “MORE INFORMATION FOR THE
INTERESTED” SITES, ARE LISTED BY COURSE WEEK.
GENERAL
BACKGROUND LINKS
USEFUL GENERAL-PURPOSE WEB SITE
http://www.accessiblesociety.org/index.shtml
Information
from the National Center for An Accessible Society (funded by the National
Institute on Disability and Rehabilitation Research). Statistics, info on
disabled people and employment, news, disability definition info, facts on web
and voting access, ADA, etc.
LIST OF
MEMBER SITES OF THE DISABILITY STUDIES
WEB RING
http://www.ringsurf.com/netring?ring=disstudies;action=list
Sites
ranging from a history of disability to an examination of disability in
children’s fiction to a site with links for students researching disability
issues and data.
ON-LINE
DISABILITY STUDIES JOURNAL
http://www.cds.hawaii.edu/dsq/
Disability
Studies Quarterly
BIBLIOGRAPHIES
Suggested
Reading on the Disability Experience (Short List)
http://astro.ocis.temple.edu/~lsonnebo/iod/shortlist
- poetry
Institute
on Disabilities; Pennsylvania's University Affiliated Program at Temple
University
Fiction,
Film, Art Related to Medicine (and Illness and Disability) (Annotated and
Searchable Lists)
http://endeavor.med.nyu.edu/lit-med/lit-med-db/topview.html
Art, film,
and literature databases listing and reviewing works. Film organized by title;
art by artist; literature by keyword,
genre, individual
annotator, title, era,
author, selected ethnicities. Search feature. From the Arts and Medicine
Project at the New York University School of Medicine.
University of Colorado at Boulder
Disability Services
ART
AND CID
http://www.niadart.org/exhibits.htm
Gallery of art by CID people, from the National Institute of Art
and Disabilities (NIAD)
http://www.artheals.org/resource/related/relatedOrgs.html
List of relevant links, by the Art and Healing Network
http://www.health.org/features/artprevent/story.htm
Links to pages focused on storytelling, from The National
Clearinghouse for Alcohol and Drug Information
LINKS TO ASSIGNED AND
SUPPLEMENTARY READING TIED TO COURSE THEMES
Required Reading on the WWW
Sawyer,
Eric. “Closing Remarks.” Health, Law and Human Rights Conference, American
Society of Law, Medicine and Ethics. Philadelphia, PA. October 1, 2001.
Accessed 12/12/01.
http://www.africapolicy.org/docs01/saw0110.htm
Washington
State Board of Health. Final Report, State Board of Health Priority: Health
Disparities. May 9, 2001. Olympia,
WA. On the WWW at http://www.doh.wa.gov/SBOH/Meetings/2001-05_09/2001_HD_Report.pdf
Note: Adobe Reader required
so may need to use TESC computer to access.
http://www.depts.washington.edu/eqhlth/
Health and income equity site at the University of Washington. Has
a list of links.
http://www.who.int/icidh/brochure/whatis.htm
Interesting
things are happening in disability definition, as part of a quest for a useable
biopsychosocial model. Check this site out for a look at how the World Health
Organization is revising its 1980 version of the ICIDH (International Classification of Impairments,
Disabilities, and Handicaps.
http://www.accessiblesociety.org/index.shtml
More good stuff on definitions of disability and why they matter,
at the Center for an Accessible Society site. (See buttons on left side of the
opening page.)
Required Reading on the WWW
National Center
on Birth Defects and Developmental Disabilities (U.S. Department of Health and
Human Services, Centers for Disease Control and Prevention) FAQ Sheet
(Frequently Asked Questions) about Fetal Alcohol Syndrome
http://www.cdc.gov/ncbddd/fas/fasask.htm
Brinkerhoff,
David B., et al. Essentials of Sociology, 5th edition.
Wadsworth Publishing, Chpt. 4. “Social Structure and Social Interaction.”
Section entitled “When Institutions Die: The Tragedy of the Ojibwa.” (Begins
bottom of page 8 of computer file, ends on page 13 of computer file). Accessed
12/12/01. http://64.78.47.118/samples/Brinkerhoff4Sec.pdf
Note: Adobe Reader required
so may need to use TESC computer to access.
Required
Reading in the Academic Search Elite (EBSCOHOST) TESC Library Database
http://www.nofas.org/main/index2.htm
Home page for the National Organization on Fetal
Alcohol Syndrome, an advocacy group.
http://www.come-over.to/FASCRC/
Laypeople’s info on FAS, from the Fetal Alcohol Syndrome Community Resource Center. Near
the bottom of the page are several lists of links.
http://come-over.to/FAS/JohnGrowsUp.htm
Link to more about a project
focused on
healing cultural trauma in indigineous peoples
http://www.isu.edu/~bhstamm/hct.htm
Project
For Community Revitalization & Healing Of Cultural Trauma In Indigenous
Peoples
http://www.accessiblesociety.org/topics/demographics-identity/newparadigm.htm
http://www.ci.sat.tx.us/planning/handbook/
http://home.mem.net/~mcil/mcil/etiqu01.htm
http://www.crinet.org/moreinfo/etq3.htm
http://www.lvc.edu/disability-services/etiquette.html
Blue,
Amy V. “The Provision of Culturally Competent Health Care.” On the WWW at http://www.musc.edu/deansclerkship/rccultur.html
http://proquest.umi.com/pqdweb
Ford,
Maureen and Katherine Pepper-Smith. “Dividing the Difference: Intelligibility
as an Element of Moral Education Under Oppression.” Journal of Moral Education, Vol. 27, No. 4. Dec. 1998. Pp.
445-463.
http://www.amsa.org/programs/gpit/cultural.cfm
“Cultural Competency in Medicine” American Medical Student
Association
http://medicine.ucsf.edu/resources/guidelines/culture.html
Extensive list of links relevant to multicultural resources
focused for the most part on health care and medicine, from University of
California at San Francisco School of Medicine
http://www.eperc.mcw.edu/educate/flash/fastfact/146.htm
Week 5 CID
as Suffering, Secondary Traumatic Stress,
Feb.
7 Caring for and Positioning Ourselves
·
Compassion
Satisfaction/Fatigue Test, at http://www.isu.edu/~bhstamm/tests.htm. Note: If you scroll
down far enough, you’ll find links to the test in both HTML and PDF formats.
·
McBratney, Heidi. “Vicarious Trauma: An Inside Story.” Psychologica. Vol. 20, No. 2. Summer 2000. Pages 8-9. Available on the
WWW at http://www.oaccpp.on.ca/news/psychvol20-2.pdf. Accessed 9-10-01.
Links to more
about STS
http://www.theultimatefirehouse.com/emotional_issues1.htm
Links to information to help firefighters and other emergency
personnel deal with “emotional issues” such as STS, anger, grief, stress, etc.
From a group called Firefighter Ministries. (Includes links to sites which are not
necessarily religious.)
http://home.earthlink.net/~hopefull/TC_compassion_fatigue.htm
A list by Hope Morrow, of compassion fatigue articles on-line.
Week 6 Adaptation
issues and models; self and identity:
Feb.
14 emotions
Required Reading in the
PROQUEST TESC Library Database
http://proquest.umi.com/pqdweb
Dewar,
Anne L. and Elizabeth A. Lee. “Bearing Illness and Injury.” Western Journal of Nursing Research.
Vol. 22 No. 8. (Dec 2000). 912-926.
Hawking,
Stephen. “Disability: My Experience with ALS.” Available at http://www.hawking.org.uk/disable/dindex.html
Week 7 Self
and Identity: body image; Loss and Sorrow;
Feb.
21 Coping
Required
Reading in the
Academic Search Elite (EBSCOHOST) TESC Library Database
Burke,
Mary L. and Georgene G. Eakes. “Milestones of Chronic Sorrow: Perspectives of
Chronically Ill and Bereaved Persons and Family Caregivers.” Journal of Family Nursing. Vol. 5 No. 4.
(Nov 1999). (SEMINAR TEXT)
In
PROQUEST TESC Library Database
http://proquest.umi.com/pqdweb
·
Livneh,
Hanoch. “Psychosocial Adaptation to Cancer: The Role of Coping Strategies.” Journal
of Rehabilitation. Vol 66. No. 2. (Apr/May/Jun 2000). Pp 40-49.
·
Livneh,
Hanoch. “Psychosocial Adaptation to Cancer: The Role of Coping Strategies.” Journal
of Rehabilitation. Vol 65. No. 3. (Jul/Aug/Sep 1999). Pp. 24-32.
Optional Reading in the Academic
Search Elite (EBSCOHOST) TESC Library Database
Cerney,
Mary S and James R. Buskirk. “Anger: The Hidden Part of Grief.” Bulletin of the Menninger Clinic. 55:2. (Spring 91)
http://proquest.umi.com/pqdweb
Benson,
Betsey A. and Carola Fuchs. “Anger-Arousing Situations and Coping Responses of
Aggressive Adults with Intellectual Disability.” Journal of Intellectual and Developmental Disability. Sept. 1999.
http://www.indiana.edu/~famlygrf/sitemap.html
This
is the site map for a course called “Grief in a Family Context” and taught by
Dr. Kathleen Gilbert at Indiana University. Lots of very good stuff (including Dr. Gilbert’s lectures), and
links.
Week 8 “Reorganization”:
Making Sense of CID
Feb. 28
Required
Reading in the PROQUEST TESC Library Database
http://proquest.umi.com/pqdweb
Paterson,
Barbara, et al. “Living with Diabetes as a Transformational Experience.” Qualitative Health Research. Vol. 9
No. 6. (Nov 1999). 786-802.
Optional Reading in the PROQUEST
TESC Library Database
http://proquest.umi.com/pqdweb
Parr, Susie. “Psychosocial
Aspects of Aphasia: Whose Perspectives?” Folia Phoniatrica et Logopaedica.
Vol. 53, No. 5. (Spe/Oct 2001). 266+
Lore, Diane. “Mothers Who Think: Emotional Handicap.” Salon.com. On the WWW at http://www.salon.com/mwt/feature/1999/08/26/disabledgma/index.html
Optional Reading on the WWW
Mercer, Ramona.
“Chronically ill children: how families adjust.” Available at http://www.nurseweek.com/ce/ce565a.html
http://www.aamft.org/families/Consumer_Updates/ChronicIllness.htm
A
brief overview of when to seek help and the type of interventions available
when chronic illness affects a family, from The American Association for
Marriage and Family Therapy.