There are thousands of chronic illness and disability sites on the WWW. These links should help you get started! No endorsement is intended by inclusion here. (Please note also that these links are to sites on the Internet, not to articles in Evergreen’s library databases. To search the Evergreen databases, you must enter each database through the library’s website, and search the database using that specific database’s search tool.) The links below were last updated on March 30, 2003 and are organized into the following sections:
Abuse and Violence, and People with Disabilities
Art and Chronic Illness, Disability
Definitions of Health and Wellness
Disability and Illness in Washington State
General Information and Link Lists
Literature (Fiction and Poetry) and Chronic Illness,
Disability
Magazines and Journals On-line
Miscellaneous (includes Etiquette, Glossary)
Centers
for Disease Control Fact Sheet
http://www.cdc.gov/ncipc/factsheets/disabvi.htm
Center
for Research on Women with Disabilities, Baylor College of Medicine
http://www.bcm.tmc.edu/crowd/abuse_women/abuse_women.html
Links
to information on several topics related to disabled women, including abuse.
VAWnet, a project of the National
Resource Center on Domestic Violence
http://www.vaw.umn.edu/vawnet/disab.htm
Statistics
and brief discussion.
Americans
with Disabilities Act HOME PAGE, U.S. Department of Justice
http://www.usdoj.gov/crt/ada/adahom1.htm
A
wealth of official information and links relating to the ADA. Includes personal
and community stories, accounts of legal cases and settlement agreements,
frequently-asked questions and answers, implementation guidelines, text of the
law and regulations, etc.
(National Council on Disability)
http://www.ncd.gov/newsroom/publications/equality.html
Interesting historical and explanatory
information about the ADA. Note especially the links to Appendix E:
Discrimination Diaries (some of the written testimony people submitted
during the ADA process, to document the discrimination against people with
disabilities) and Appendix F: Key
Concepts in the ADA, very useful for understanding the definitions,
assumptions and values underlying the ADA. The text of the law itself , as it
passed in 1990, can be accessed at http://www.usdoj.gov/crt/ada/pubs/ada.txt
http://www.accessiblesociety.org/topics/ada/adachangedmylife.htm
Stories (and links to more) about changes the ADA has made in people’s lives.
National Institute on Disability and Rehabilitation Research -- ADA Technical Assistance Program
http://www.adata.org/whatsada.html
Click on the links in the text for relatively brief discussions of the structure of the ADA (synopsis of major sections of the Act), the definition of disability in the ADA, and the history of civil rights law related to disabilities from the 1970s through signing of the ADA in 1990. (Note: If the link above takes you directly to the history page, click on “About the ADA” in the list of links to the left for a menu.)
Brief
discussions of U.S. disability rights laws.
21st Century
Disability Think Tank on Overcoming the Most Significant Barriers to
Independence
http://www.halftheplanet.org/departments/think_tank/table_of_contents.html
Report and issues papers from the first meeting of the 21st Century Disability Think Tank. The goal of the Think Tank is to create a roadmap for the disability civil rights movement and society to follow to achieve both total societal inclusion and enhanced pride and self-esteem in being members of and belonging to the community of disability.
“Art, Disability & Expression” online exhibit from VSA arts http://www.vsarts.org/gallery/exhibits/disability/foreword.html
VSA Arts – An Organization and
On-line Gallery
http://www.vsarts.org/index.html
VSA arts is an International organization that creates
learning opportunities through the arts for people with disabilities. [VSA
stands for Vision, Strength, and Artistic Expression.] Jean Kennedy Smith
founded VSA in 1974 as an affiliate of The John F. Kennedy Center for the
Performing Arts.
National Institute of Art and
Disabilities (NIAD)
http://www.niadart.org/exhibits.htm
Gallery of images of art by CID
people.
"Images of Health and Disability" 2002
http://www3.who.int/icf/photo_gallery/index.htm
http://www.un.org/Photos/disabled.htm
United Nations photos of disabled people around the world.
Society for the
Arts in Healthcare
http://www.societyartshealthcare.org/
Click
on “Links to Arts in Healing Programs” for a list of arts and healing programs
in the U.S. The “Traveling Exhibits” button leads to several images of art
about illness.
Art and Healing
Network
http://artheals.org/index.html
A list of links to relevant
organizations, artists, books, videos, etc. – including resources for artists
working in this area.
The National Arts and Disability Center (NADC)
National information dissemination, technical assistance and referral center specializing in the field of arts and disability. The NADC is dedicated to promoting the full inclusion of children and adults with disabilities into the visual-, performing-, media, and literary-arts communities. At their links site, http://nadc.ucla.edu/links.htm , NADC provides connections to a number of sites featuring work by artists with disabilities and illness.
National
Disability Arts Forum (NDAF)
http://www.ndaf.org/menue.html
Organization
based in the United Kingdom, with a mission of “creating equality of
opportunity for disabled people in all aspects of the arts.”
Fiction,
Film, Art Related to Medicine (and Illness and Disability) -- Annotated and
Searchable Lists
http://endeavor.med.nyu.edu/lit-med/lit-med-db/topview.html
Art,
film, and literature databases which list and contain reviews of works. Film
organized by title; art by artist; literature by keyword,
genre, individual
annotator, title, era,
author, selected ethnicities. Search feature. From the Arts and Medicine
Project at the New York University School of Medicine.
http://www.artsinaction.asn.au/home.htm
Arts
in Action is the leading disability organization for arts and disability in
South Australia. From their website:
“Our aim is to facilitate voice and expression for people with
disabilities.” They also characterize the arts as “ the language of disability
culture.”
http://ericec.org/faq/arts-x.html
From ERIC Clearinghouse on
Disabilities and Gifted Education
dizABLED
John Callahan
http://www.animationworks.com.au/quads/johncallahan_main.htm
http://www.nelvana.com/pelswick/
Ethnomed
http://www.fammed.washington.edu/predoctoral/clerkship/sg_ccr_cc.html
Brief primer about cultural competency,
for UW medical students on their Family Medicine Clerkship.
Checklists for Cultural Assessment (Queensland, Australia)
http://www.health.qld.gov.au/hssb/cultdiv/check/chk_list.pdf#Adobe
Queensland
[Australia] Health’s publication containing checklists and guides for working
with people from cultural and linguistic backgrounds other than one’s own.
Diversity and cultural competency resources for physicians-in-training, also useful for other healthcare professionals. The Cultural Competency in Medicine Project in a Box link lists some interesting “areas of dissonance” between people from different cultures, about one-third of the way down the page.
http://www.xculture.org/index.cfm
Profiles of specific
cultural communities in relation to providing healthcare to their members.
Includes discussion of the specific community (for example, Cambodians) in the
Seattle area. Link to profiles near bottom of the site’s home page.
http://medicine.ucsf.edu/resources/guidelines/culture.html
List of links relevant to multicultural
and cross cultural issues in health care.
http://www.accessiblesociety.org/topics/demographics-identity/dkaplanpaper.htm
http://www.adata.org/whatsada-definition.html
National (information) Clearinghouse on Education and
Training for people with disabilities
A recap of the World Health Organizations changing International Classification of Functioning and Disability (ICIDH-2), at the NCET site [National (information) Clearinghouse on Education and Training for people with disabilities], located in Australia.
http://www.deakin.edu.au/tedca/ncet/information/resources/icidh.html
http://www.ilru.org/healthwellness/healthinfo/index.html#Physical
FACT
SHEET: Health, Wellness, & Disability:
Perspectives of
Persons with Disability
(Note: A slightly different version of the fact sheet can
be found at http://www.healthwellness.org/rrtclibrary/publications/library_study1brief.htm
if you are having trouble connecting to the ilru link.)
Health and Wellness links from Rehabilitation Research and Training
Center (RRTC) on Health and Wellness
http://www.healthwellness.org/sitemap.htm
For links on health and wellness for people with disabilities, first click on “Site Map” (upper right corner of screen), and then scroll down to Health Information, Definition of Health and Wellness” for links.
Healthy
People 2010, Chapter 6: Disability and Secondary Conditions
http://www.healthypeople.gov/Document/HTML/Volume1/06Disability.htm
Healthy
People 2010 is the third
set of 10-year national health objectives overseen by the U.S. Department of
Health and Human Services (HHS). The report as a whole contains a rich set of
data and information about the state of US residents’ health, in a useful
format. This chapter focuses on the health, well-being, and participation in
life activities of disabled people. Links at the bottom of this web page take
you to the rest of the report.
Health
Disparities Encountered by Persons with Disabilities
http://www.cds.hawaii.edu/DSQ/_articles_pdf/2003/Winter/dsq_2003_Winter_06.pdf
Disabilities
Studies Quarterly article
on discrimination in health care relative to disabled persons.
The
Concept of Wellness
University at Buffalo, The State
University of New York
http://www.livingwell.buffalo.edu/well.shtml
Thought-provoking ideas about various aspects of wellness.
“Defining
Impairment and Disability: Issues At Stake” (Mike Oliver)
http://www.leeds.ac.uk/disability-studies/archiveuk/Oliver/exploring%20divide%20ch3.pdf
Chapter 3 in Exploring
the Divide, edited by Colin Barnes and Geof Mercer, Leeds: The Disability
Press, 1996, pp.29 -54.
Washington
State Department of Health
http://www.doh.wa.gov/HWS/CD.shtm
(See the Film page of this website
for lists of informational and CID culture videos available at TESC and the
Timberline Regional Library.)
Fiction,
Film, Art Related to Medicine (and Illness and Disability) -- Annotated and
Searchable Lists
http://endeavor.med.nyu.edu/lit-med/lit-med-db/topview.html
Art,
film, and literature databases which list and contain reviews of works. Film
organized by title; art by artist; literature by keyword,
genre, individual annotator,
title, era,
author, selected ethnicities. Search feature. From the Arts and Medicine
Project at the New York University School of Medicine.
disabilityfilms.co.uk
http://www.disabilityfilms.co.uk/
This site presents a detailed list of 2,500 feature films which
involve in one way or another various disabilities. Organized
by disability and by film title.
Disability Studies On-line Magazine
http://www.disabilitystudies.com/videos.htm
List
of some non-mainstream films or videos dealing with disability issues, compiled
by Carrie
Sandahl csandahl@mailer.fsu.edu.
http://www.accessiblesociety.org/index.shtml
http://www.accessiblesociety.org/topics/topicsindex.shtml (topic index to links)
Funded
by the National Institute on Disability and Rehabilitation Research, The Center
for An Accessible Society is a national organization designed to focus public
attention on disability and independent living issues by disseminating
information developed through NIDRR-funded research to promote independent
living. LINK TO CENSUS
National
Council on Disability (NCD)
The
National Council on Disability (NCD) is an independent federal agency which
takes a civil rights and watchdog approach in making recommendations to the
President and Congress on issues affecting Americans with disabilities. This
site links you to NCD reports, and to “newsroom” and “what’s new” features that
are useful in keeping up on some of what’s being said and what’s happening in
the national public policy arena, related to disabilities.
Cornell University Rehabilitation Research
and Training Center
http://www.ilr.cornell.edu/ped/dep/rrtc.html
Home
page for the Rehabilitation Research and Training Center for Economic Research
on Employment Policy for Persons with Disabilities (RRTC). Information, links
and some statistics related to employment and disability.
DisabilityInfo.gov
http://www.disabilityinfo.gov/
Bills
itself as “the
comprehensive Federal website of disability-related government resources.”
Disability Information
http://www.abilityinfo.com/index.html
Medline Plus (US National Library of
Medicine and National Institutes of Health)
http://www.nlm.nih.gov/medlineplus/disabilitiesgeneral.html
Links
to a range of interesting information.
Disability Resources on the Internet
http://www.disabilityresources.org/index.html
Awesome
index to on-line resources from Disability Resources.
Dimagine
Link Page
http://www.dimagine.com/page8.html
A nice set of links from David Pitonyak, Ph.D., who has a consultation and training practice on disability issues.
http://www.mskcc.org/mskcc/html/11570.cfm
This website provides information about using herbs, botanicals and other products in healthcare. Clicking on the button on the right of the page, under “Other resources” will take you to links to complementary and alternative medicine websites.
http://www.disabilityhistory.org/exhibits.html
A community history project providing timelines, on-line exhibits, bibliographies and more.
http://www.disabilityresources.org/HISTORY.html
Links from Disability Resources Monthly.
Beyond Affliction: The Disability History Project
http://www.npr.org/programs/disability/
NPR’s four hour
documentary radio series about the shared experience of people with
disabilities and their families since the beginning of the 19th century. This
Web site includes excerpts, as well as many of the primary source documents -
extended interviews, images, and texts- from which the on-air programs were
developed.
Fiction,
Film, Art Related to Medicine (and Illness and Disability) -- Annotated and
Searchable Lists
http://endeavor.med.nyu.edu/lit-med/lit-med-db/topview.html
Art,
film, and literature databases which list and contain reviews of works. Film
organized by title; art by artist; literature by keyword,
genre, individual
annotator, title, era,
author, selected ethnicities. Search feature. From the Arts and Medicine
Project at the New York University School of Medicine.
http://www.cds.hawaii.edu/dsq/
Advertises itself as the first [academic] journal in the field of disability studies. Complete articles on-line.
http://www.ragged-edge-mag.com/
Ragged Edge magazine continues the award-winning
periodical, The Disability Rag. From the website: “We cover the
disability experience in America -- what it means to be a crip living at the
start of the 21st century.” Complete articles and essays on-line.
http://www.newmobility.com/magazine.cfm
Website
contains short selections from the print magazine. Written by and
for wheelchair users, New Mobility provides a forum for sharing life
experience, for learning what really works in daily life, for networking and
becoming part of a community.
An electronic magazine for people with spinal cord injury.
http://www.disabilitynow.org.uk/
A leading disability site in the United Kingdom, with news and feature articles, advice, adverts, links, an archive and a chat forum
http://www.disabilityworld.org/index.htm
Disability World is a web-zine dedicated to advancing an exchange of information and research about the international independent living movement of people with disabilities.
The on-line site for the edgy Mouth Magazine, “voice of the disability nation.” Subscribe to the print edition to get the full flavor – the on-line site is just a sample.
The Education on Disability and Gender
Equity (EDGE) website introduces students to core high school curriculum
concepts using examples that educate and inform them about disability and
gender.
Coming to Terms with Disabilities
A compilation of vocabulary relating to
visible and non-visible disabilities by the New York State Senate Select
Committee on the Disabled.
Access
and Opportunities: A Guide to Disability Awareness
Disability Etiquette Handbook
The City of San Antonio, Texas Planning
Department and the Disability Advisory Committee prepared this to enhance
opportunities for persons with disabilities to pursue their careers and
independent lifestyles.
Communicating With And About Individuals
With Disabilities
http://nadc.ucla.edu/Communic.html
Bilbiography and links from the National
Arts and Disability Center.
Trace Research & Development
Center, College of Engineering, University of Wisconsin-Madison
Tips
and tools for making printed documents, web sites and consumer products
accessible.
On A Roll
http://www.ican.com/channels/on_a_roll/index.cfm
Talk radio on life and disability.
Disability
Radio Worldwide
http://www.independentliving.org/radio/index.html
Disability Radio Worldwide is a 30-minute weekly program broadcast
by FM stations, radio reading services, over the Internet, and on shortwave
radio. Weekly programs are distributed in the United States by the Pacifica
Radio Network and can be heard on many local Pacifica affiliates.
U.S. Census Surveys Reports and Data on Disability
http://www.census.gov/hhes/www/disability.html
Includes employment,
earnings, and disability information, and demographic information.
http://www.census.gov/hhes/www/disable/disabcps.html
Census disability-related information in tables
http://www.healthwellness.org/healthinfo/healthwelldef/healthinfo_frcensus.htm
Brief synopsis of recent U.S. Census findings on disability
The
Center for An Accessible Society
http://www.accessiblesociety.org/topics/demographics-identity/nidrr-lrp-defs.htm#statlinks
At
bottom of page, links to chartbooks containing charts, graphs and information
on these topics:
Chartbook on
Women and Disability in the United States Last updated: 07/21/99.
Chartbook on
Work and Disability in the United States Last updated: 03/19/99
Chartbook
on Disability in the United States Last
updated: 11/12/98.
Disability
Statistics Center – University of California, San Francisco
http://dsc.ucsf.edu/default.html
Statistics
and studies relevant to disability in the US.
National
Center for Health Statistics – Fast Stats on Disability
http://www.cdc.gov/nchs/fastats/disable.htm
National Center for Health Statistics – Fast Stats on Minority Health
http://www.cdc.gov/nchs/fastats/minority.htm
National
Center for Health Statistics – Summary of Notifiable Diseases http://www2.cdc.gov/mmwr/summary.html
Notifiable diseases are those healthcare personnel must report to
local health departments, because the diseases are contagious or indicators of
other significant threats to public health. There are links here to annual
reports.
U.S. Centers for Disease Control -- Morbidity
and Mortality Weekly Report (MMWR)
http://www.cdc.gov/mmwr/preview/mmwrhtml/mm5007a3.htm
U.S. Centers for Disease Control -- Morbidity Tables
http://www.cdc.gov/mmwr/distrnds.html
Data for selected diseases reported by
the 50 states, New York City, the District of Columbia, and the U.S.
territories are collated and published weekly in the Morbidity and Mortality
Weekly Report (MMWR).
U.S. Centers for Disease Control -- National Center for Chronic Disease
Prevention and Health Promotion
http://www.cdc.gov/nccdphp/overview.htm
Overview and some stats on chronic disease in the US, with links to state-level information on specific diseases, funding, etc., and links to other publications on chronic disease. Among these links are issues of Chronic Disease Notes & Reports, the National Center’s newsletter for health professionals, at http://www.cdc.gov/nccdphp/cdnr.htm , and various publications and reports on chronic disease, at http://www.cdc.gov/nccdphp/publicat.htm .
United
Nations Statistics Division – Reports on Disability
http://unstats.un.org/unsd/disability/default.asp
Washington
State Department of Health
http://www.doh.wa.gov/HWS/CD.shtm
World
Health Organization Statistical Information
http://www.who.int/research/en/
Statistics
on disease and death around the world.
World Health Organization Statistical
Information System (WHOSIS)
http://www3.who.int/whosis/menu.cfm
The WHO Statistical Information System is
a guide to health and health-related epidemiological and statistical
information available from the World Health Organization, and elsewhere.
National Center for Education Statistics,
US Department of Education
http://nces.ed.gov/surveys/npsas/table_library/
Tables of data on numbers of US
undergraduate and graduate students who self-report disabilities and health
problems. Once in the NCES Table Library, click on Data Search Tools, scroll
down and click on “View Available Data Tables,” then on “Student,” then on
“Miscellaneous.” In this screen, use the toggle switch and choose
“Disabilities”. Hit “Go.” There is also
a somewhat outdated analysis report “Students with Disabilities in
Postsecondary Education” at this website, at http://nces.ed.gov/pubsearch/pubsinfo.asp?pubid=1999187
The
DisAbility Project
http://www.disabilityproject.com/
The
DisAbility Project is an ensemble engaging in conversation, writing,
sound, movement and theatrical exercises to develop and perform
material
around the culture of disability.
National
Theatre of the Deaf
Theatre
company’s web page, with additional Deaf culture links at
http://www.ntd.org/about_resources.htm
.
URL for this webpage: http://academic.evergreen.edu/curricular/ethicsanddifference
Links
last updated on April 2 2003.