Reading Guide Sheets for Ethics and Difference
 
 

Week 1 Reading        Intro to CID + Social Contract Theory

Week 2 Reading      Intro to CID + Social Contract Theory

Week 3 Reading       Rawlsian Contractualism + ADA

Week 4 Reading     Experiencing CID

Week 5 Reading       Negotiating Self and Identity

Week 6 Reading       CID as Difference

Week 7 Reading       Relating to Difference in a Practitioner/Client Setting

Week 8 Reading       Is Difference Valuable?

Week 9 Reading              Paper Presentations; CID and “Human”

Week 10 Reading       Wrap-up

 

 


Week 1 Reading        Intro to CID + Social Contract Theory

Saturday, April 5    

 

Some Things To Look For . . .

·        Concepts: Impairment, disability, social model of disability, distinction between illness and disease, medicalization, Wendell’s definition of chronic illness

  • Wendell’s concerns about the application of the social model of disability to chronic illness, and her reasons for ambivalence about preventing or curing all chronic illness
  • Ethical Concepts and Principles: Rights (universal, human), care, difference, commonality

 

 

 

Required Reading in Academic Search Elite TESC Library Database

http://www.evergreen.edu/library/catalog/orSubject.htm

·        Morris, Jenny. “Impairment and Disability: Constructing an Ethics of Care That Promotes Human Rights.” Hypatia. 16:4 (Fall 2001), pp. 1-16.

  • Wendell, Susan. “Unhealthy Disabled: Treating Chronic Illnesses as Disabilities.”  Hypatia. 16:4 (Fall 2001), pp. 17-33.

 

 

Required Reading on the WWW

·        Evergreen’s Indoor Air Quality Policy (includes scented products) http://www.evergreen.edu/policies/g-air.htm

·        “Medicalisation of Insight in Dementia” -- Paper presented at Annual Scientific Meeting of the Gerontological Society of America, Washington DC 17th-21st, November, 2000. John Bond and Lynne Corner http://www.ncl.ac.uk/pahs/research/services/conferences/insight.doc

 

Optional Reading in the Academic Search Elite (EBSCOHOST) TESC Library Database

Conrad, Peter and Deborah Potter. “From Hyperactive Children to ADHD Adults: Observations on the Expansion of Medical Categories.”  Social Problems. 47:4. Nov. 2000.

 


Week 2 Reading        Intro to CID + Social Contract Theory

Wednesday, April 9

Some Things To Look For . . .

·        What does Clare say about the social model, given her own experiences of disability?

·        What patterns do you see in the timelines? What do they reveal to you about society’s “construction” (definition, development) of a particular position or view of disability?

·        How is disability defined in the MMWR report? Does the ADA definition differ from the MMWR in significant ways?

·        What patterns do you see in the numerical data from the WWW? Who is most often disabled or ill? What factors might be operating to make numbers different for different population groups? For example, why do you think African American women die more frequently of heart disease than women of other racial groups?

Required Reading  in Course Reader

·         Adams, Maurianne, Lee Anne Bell, Pat Griffin, eds. Teaching for Diversity and Social Justice: A Sourcebook. New York: Routledge, 1997. 

o        “Understanding Abilities and Disabilities—Toward Interdependency” (Bob Bureau).

o        “History of Ableism in Europe and the United States – Selected Timeline” (Pat Griffin and Mary McClintoc). 

o       “Important Twentieth-Century Federal Legislation for People with Disabilities”.

·        Clare, Eli (Elizabeth). “The Mountain” pages 1-13. Exile and Pride: Disability, Queerness, and Liberation. Cambridge, MA: South End Press, 1999.

 

Required Reading on the WWW   

NOTE:  Please bring your copies of the Prevalence and Overview articles to class.

·        “Prevalence of Disabilities and Associated Health Conditions Among Adults --- United States, 1999”  http://www.cdc.gov/mmwr/preview/mmwrhtml/mm5007a3.htm

Morbidity and Mortality Weekly Report [MMWR] for February 23, 2001 [50(07);120-5]. (Note: This article also appears on the WWW as a PDF file, at   http://www.cdc.gov/mmwr/PDF/wk/mm5007.pdf . The article is on pages 8-13.)

·        “Chronic Disease Overview”  http://www.cdc.gov/nccdphp/overview.htm

National Center for Chronic Disease Prevention and Health Promotion

 

Optional Reading on Reserve in TESC Library

Wendell, Susan. Ch. 2  “The Social Construction of Disability.” The Rejected Body: Feminist Philosophical Reflections on Disability. New York: Routledge, 1996.

 

Optional Reading on the WWW

http://www.accessiblesociety.org/topics/demographics-identity/dkaplanpaper.htm

Paper by Deborah Kaplan, Director of the World Institute on Disability discussing several models or paradigms of disability, and the ADA definition.

 


Week 3 Reading       Rawlsian Contractualism + ADA

Some Things To Look For . . .

  • Key concepts in Rawls: Original Position; Veil of Ignorance; Fairness; Reasonableness; Persons as Free and Equal
  • Rawls’ reasons in Theory of Justice for placing people behind a veil of ignorance — compare with “Justice as Fairness,” section 3.
  • The general provisions of the ADA (what it requires of whom), and who has benefited from it
  • What kinds of evidence the letter writers used to try to influence policy makers to pass the ADA (Monitor your own reactions to this evidence – are you persuaded? Why or why not?)
  • Definitions of “discrimination,” and which entities are required by the Act to NOT discriminate

 

Wednesday, April 16

Required Reading  in Course Reader

·        John Rawls, selections from A Theory of Justice. Cambridge, MA: Belknap Press, 1971.

Required Reading in the JSTOR Database (available on-campus, or off-campus with TESC ID)

·        John Rawls, “Justice as Fairness,” Philosophical Review 67, no. 2 (April 1958), pp. 164-194.

 

Saturday, April 19

Required Reading in Course Reader

·        Continue with earlier Rawls’ selections.

·        John Rawls, “The Political Conception of the Person,” from Political Liberalism. New York: Columbia University Press, 1993. pp. 29-35.

 

Required Reading on the WWW   

“The Americans with Disabilities Act” Overview of ADA as public policy, from The Center for An Accessible Society 

http://www.accessiblesociety.org/topics/ada/index.htm

 

“Americans with Disabilities (ADA)” Brief Overview of ADA titles, from the U.S. Department of Justice, Civil Rights Division, Disability Rights Section

http://www.usdoj.gov/crt/ada/cguide.htm#anchor62335


Discrimination Diaries section from “Equality of Opportunity: The Making of the Americans with Disabilities Act”  (National Council on Disability)

http://www.ncd.gov/newsroom/publications/equality.html

Scroll down and click on Appendix E.

 

ADA, Section 102, “Discrimination.” 

http://www.usdoj.gov/crt/ada/pubs/ada.txt
Note: You’ll have to scroll down to find Section 102. Note that the sections are numbered 1, 2, 3, 101, 102 – this is the fifth section down.

Optional Reading on the WWW
“Faces of the ADA” ADA success stories and photos (including University of Washington football player Toure Butler) for the 10th Anniversary of the Americans with Disabilities Act, from the US Department of Justice. http://www.usdoj.gov/crt/ada/adafaces.htm

 


Week 4 Reading     Experiencing CID

 

Some Things To Look For . . .

·        Habermas’ account of the process whereby norms of behavior are justified

·        Habermas’ reasons for rejecting Rawls’ “Original Position”

·        Position/role of CID person, of close friends and family, and of professional caregivers at various phases of CID process

·        Particular identity experience and concerns of males in relation to CID, according to Charmaz and according to Hawking

·        Passages in Muras and Rose reading, and in Hawking reading, that illustrate identity concerns, and Fennell’s theoretical structure of phases

 

 

Wednesday, April 23

 

Required Reading in Course Reader

·        Habermas, selections from Moral Consciousness and Communicative Action, translated by Christian Lenhardt and Shierry Weber Nicholsen. Cambridge, MA: MIT Press, 1991.

·        Charmaz, Kathy. “Identity Dilemmas of Chronically Ill Men.” Sociological Quarterly, 35:2. (1994) pp. 269-288.

  • Fennell, Patricia A.  “Understanding the Different Phases of CFS.” The CFS Research Review. Vol. 1 No. 2. Spring, 2000. The Chronic Fatigue and Immune Dysfunction Syndrome Association of America. 

 

Required Reading on the WWW

·        Muras, Jane and PJ Rose  http://nadc.ucla.edu/holdfiles/JaneMuras.htm

“Reconstructing Reality/Reconstructing Myself Me and No Strings Attached Theatre of Disability” 

Or you may have to enter here:   http://nadc.ucla.edu/library.cfm  

Click on the Disability, Arts and Culture link, then on name of article

 

·         Hawking, Stephen. “Disability: My Experience with ALS.” Available at http://www.hawking.org.uk/disable/dindex.html

 

 

Optional Reading in Academic Search Elite TESC Library Database
http://www.evergreen.edu/library/catalog/orSubject.htm

·        Livneh, Hanoch. “Psychosocial Adaptation to Chronic Illness and Disability: A Conceptual Framework.” Rehabilitation Counseling Bulletin, Vol. 44 No. 3 (Spring 2001). Pp151-161.

·        Livneh, Hanoch. “Psychosocial Adaptation to Cancer: The Role of Coping Strategies.” Journal of Rehabilitation. Vol 66. No. 2. (Apr/May/Jun 2000). Pp 40-49.

·        Livneh, Hanoch. “Psychosocial Adaptation to Cancer: The Role of Coping Strategies.” Journal of Rehabilitation. Vol 65. No. 3. (Jul/Aug/Sep 1999). Pp. 24-32.

 

 


Week 5 Reading       Negotiating Self and Identity

Some Things To Look For . . .

·        Connections among these concepts in After Virtue: Virtues, Practices, Internal Goods, Narrative, Personal Identity

·        MacIntyre’s account of vulnerability and dependence in connection with goods and virtues

·        Various definitions of “self” in Kelly and Desjarlais. Who or what creates a “self,” according to each author?

·        What Hornbacher’s account has to say about self in relation to illness.

·        Co-existence in same person/situation, of health and CID. Is this more than a matter of redefinition of terms? Is health-in-illness different from health-in-disability?

 

Wednesday, April 30

Required Reading in Course Reader

·         MacIntyre. Selections from After Virtue, 2nd ed. Notre Dame: Notre Dame University Press, 1984. pp. 147-150, 162-4, 186-194, 216-223.

·         Mairs, Nancy. “On Having Adventures”. Plaintext. Tucson: University of Arizona Press, 1986. p. 3-7.

·         Lindsey, Elizabeth. “Health within Illness: Experience of Chronically Ill/Disabled People.” Journal of Advanced Nursing. 24. 1996.

·         Day, Lilli Jolgren. “Acceptance vs. Hope and the Pinocchio Factor.” The CFIDS Chronicle, March/April 1998. The Chronic Fatigue and Immune Dysfunction Syndrome Association of America.

Required Reading on the WWW   
http://www.cds.hawaii.edu/dsq/_articles_html/2002/Winter/dsq_2002_Winter_09.html

Johnson, Harriet McBryde. “Worth Living.” Disability Studies Quarterly. Winter 2002, Volume 22, No. 1 pages 76-80

 

Optional Reading in the Research Library Complete TESC Library Database

http://www.evergreen.edu/library/catalog/orSubject.htm

·         Burke, Mary L. and Georgene G. Eakes. “Milestones of Chronic Sorrow: Perspectives of Chronically Ill and Bereaved Persons and Family Caregivers.” Journal of Family Nursing. Vol. 5 No. 4. (Nov 1999).

Paterson, Barbara, et al. “Living with Diabetes as a Transformational Experience.”  Qualitative Health Research. Vol. 9 No. 6. (Nov 1999). 786-802.

 




Saturday, May 3       Life Goes on  . . . Differently

Required Readings: 

MacIntyre, Alasdair. Dependent Rational Animals. Chapters 1, 7-9.

in Course Reader

·         Kelly, Michael. “Self, Identity and Radical Surgery.”  Sociology of Health and Illness, 14:3 (1992). Pp. 390-415.

·         Desjarlais, Robert. “The Makings of Personhood in a Shelter for People Considered Homeless and Mentally Ill.” Ethos. 27:4. (2000) pp. 466-489.

·        Hornbacher, Marya. Excerpt from Wasted: A Memory of Anorexia and Bulimia. In Kristen Couse, ed. Cure: Stories of Healing Mind and Body. New York:  Marlow & Company [A Division of Avalon] and Balliett & Fitzgerald Inc. 2000. pp. 321-344.

 

 


 
 

Week 6 Reading       CID as Difference

 

 

 

Some Things To Look For . . .

·        What differences do vulnerability and dependence suggest, and how are they important for the virtues?

·        Are people living with CID and people not living with CID different from each other? In what ways are we different? In what ways are we the same? Are disabled people different from chronically ill people in ways that matter?

 

 

Wednesday, May 7

 

Required Reading:

MacIntyre. Dependent Rational Animals. Chapters 10-13.

 

Required Reading  in Course Reader

Butler, Sandra and Barbara Rosenblum. Cancer in Two Voices. San Francisco: Spinsters Book Company, 1991.  “Living in An Unstable Body” and “Living in My Changing Body – And Hers”

 

Required Reading on the WWW   

Georgina Kleege

http://www.ragged-edge-mag.com/0302/0302ft2.html

Essay entitled “Charity Begins At Home”

 

 

 

 

 


Week 7 Reading       Relating to Difference in a Practitioner/Client Setting

 

Some Things To Look For . . .

  • How do differences among people create difficulties for communicative ethics?
  • Three general categories of health beliefs
  • What questions and actions can communicate a desire to bridge difference, in a practitioner/client setting?
  • One model of mutuality between health practitioners and clients, and the values behind it.

 

 

Wednesday, May 14

Required Reading  in Course Reader

·                    Jackson, Laurie E. “Understanding, Eliciting and Negotiating Clients’ Multicultural Health Beliefs.” The Nurse Practitioner. Vol. 18, No. 4. April 1993.

·                    Kleinman, Arthur. Excerpts from The Illness Narratives: Suffering, healing and The Human Condition. Basic Books, 1988. ISBN 0-465-03204-4  pp. 128-129, 132-136, 239-244.

·                   Lorde, Audre. Excerpt from Section III, “Breast Cancer: Power Vs. Prosthesis.” The Cancer Journals (special edition). San Francisco: Aunt Lute Books, 1997. 

 

Saturday, May 17

Required Reading  in Course Reader

·        Smith, Janet Farrell. "Communicative Ethics in Medicine: The Physician-Patient Relationship," in From Feminism and Bioethics, ed. by Susan M. Wolf. Oxford: Oxford University Press, 1996. pp. 184-215.

·        Cushing, Pamela and Tanya Lewis. “Negotiating Mutuality and Agency in Care-giving Relationships with Women with Intellectual Disabilities.” Hypatia, 17:3 (Summer 2002).  Pp. 173-193.

 

Optional Reading on the WWW

Blue, Amy V. “The Provision of Culturally Competent Health Care.” Available on the WWW at http://www.musc.edu/deansclerkship/rccultur.html .

 

Optional Reading in the Research Library Complete TESC Library Database
http://www.evergreen.edu/library/catalog/orSubject.htm

Ford, Maureen and Katherine Pepper-Smith. “Dividing the Difference: Intelligibility as an Element of Moral Education Under Oppression.” Journal of Moral Education, Vol. 27, No. 4. Dec. 1998. Pp. 445-463.

 

 


Week 8 Reading       Is Difference Valuable?

 

 

 

 

Some Things To Look For . . .

 

  • What ethical issues do you find in the Goodman reading? What should be considered, do you think, in order to answer the main question she raises?

 

 

Wednesday, May 21

 

Required Reading  in Course Reader

Goodman, Ellen. “A Pill for What Haunts You.” The Boston Globe Online, Editorials/Opinions section, 11/14/2002.

 

Required Reading on the WWW

Tong, Rosemarie, "Feminist Ethics", The Stanford Encyclopedia of Philosophy (Fall 2002 Edition), Edward N. Zalta (ed.). http://plato.stanford.edu/entries/feminism-ethics/

 

 

 

 

 


 
 

Week 9 Reading                Paper Presentations; CID and “Human”

 

Some Things To Look For . . .

·                    What is it to be a person? To be human? Are these different?

 

 

Wednesday, May 28

 

Required Reading on the WWW

“The Metamorphosis” (Die Verwandlung), Franz Kafka

http://www.kafka.org/transl/english/metamorphosis.htm

 

Required Reading in the PROJECT MUSE TESC Library Database

http://www.evergreen.edu/library/catalog/orSubject.htm

Rowe, Michael. “Metamorphosis: Defending the Human.” Literature and Medicine 21:2. 2002. pp. 264-280.

Once you are in Project Muse, you may need to go to the advanced search screen and enter each of these words on a separate line: metamorphosis, defending, human. Then hit the “search” button.

 

Required Reading  in Course Reader

·        Review MacIntyre, After Virtue, pp. 216-223.

 

 

Saturday, May 31

 

Required Reading  in Course Reader

 Brock, Dan W. “Justice and the Severely Demented Elderly.” From Life and Death. Cambridge: Cambridge University Press, 1993. pp. 356-387.

 

 

 


Week 10 Reading       Wrap-up

 

No reading assignment -- Porfolios and papers due!