Some Things To Look For . . .
·
Concepts: Impairment,
disability, social model of disability, distinction between illness and
disease, medicalization, Wendell’s definition of chronic illness
|
Required Reading in Academic Search Elite TESC Library Databasehttp://www.evergreen.edu/library/catalog/orSubject.htm ·
Morris, Jenny.
“Impairment and Disability: Constructing an Ethics of Care That Promotes
Human Rights.” Hypatia. 16:4 (Fall
2001), pp. 1-16.
Required Reading on the WWW ·
Evergreen’s Indoor Air
Quality Policy (includes scented products) http://www.evergreen.edu/policies/g-air.htm ·
“Medicalisation
of Insight in Dementia” -- Paper presented at Annual Scientific Meeting of
the Gerontological Society of America, Washington DC 17th-21st,
November, 2000. John Bond and Lynne Corner http://www.ncl.ac.uk/pahs/research/services/conferences/insight.doc
Optional Reading in the Academic Search Elite
(EBSCOHOST) TESC Library Database Conrad, Peter and
Deborah Potter. “From Hyperactive Children to ADHD Adults: Observations on
the Expansion of Medical Categories.”
Social Problems. 47:4. Nov.
2000. |
Some Things To Look For . . .
·
What does Clare say about the
social model, given her own experiences of disability? ·
What patterns do you see in
the timelines? What do they reveal to you about society’s “construction”
(definition, development) of a particular position or view of disability? ·
How is disability defined in
the MMWR report? Does the ADA definition differ from the MMWR in significant
ways? ·
What patterns do you see in
the numerical data from the WWW? Who is most often disabled or ill? What
factors might be operating to make numbers different for different population
groups? For example, why do you think African American women die more
frequently of heart disease than women of other racial groups? |
Required Reading in Course Reader·
Adams, Maurianne, Lee Anne Bell, Pat Griffin, eds. Teaching for Diversity and Social Justice:
A Sourcebook. New York: Routledge, 1997.
o
“Understanding Abilities and Disabilities—Toward Interdependency”
(Bob Bureau). o
“History of Ableism in Europe and the United States – Selected
Timeline” (Pat Griffin and Mary McClintoc).
o “Important Twentieth-Century Federal Legislation for People with Disabilities”. · Clare, Eli (Elizabeth). “The Mountain” pages 1-13. Exile and Pride: Disability, Queerness, and Liberation. Cambridge, MA: South End Press, 1999. Required Reading on the WWWNOTE: Please bring your copies of the Prevalence and Overview
articles to class.
·
“Prevalence of
Disabilities and Associated Health Conditions Among Adults --- United States,
1999” http://www.cdc.gov/mmwr/preview/mmwrhtml/mm5007a3.htm Morbidity and Mortality Weekly Report [MMWR] for February 23, 2001 [50(07);120-5].
(Note: This article also appears on the WWW as a PDF file, at http://www.cdc.gov/mmwr/PDF/wk/mm5007.pdf
. The article is on pages 8-13.) ·
“Chronic Disease Overview” http://www.cdc.gov/nccdphp/overview.htm National Center for Chronic
Disease Prevention and Health Promotion
Optional Reading on Reserve in
TESC Library
Wendell, Susan. Ch. 2 “The Social Construction of Disability.” The Rejected Body: Feminist Philosophical Reflections on Disability. New York: Routledge, 1996. Optional Reading on the WWW http://www.accessiblesociety.org/topics/demographics-identity/dkaplanpaper.htm Paper by Deborah Kaplan, Director of the World Institute on Disability discussing several models or paradigms of disability, and the ADA definition. |
Some Things To Look For . . .
|
Wednesday, April 16
Required
Reading in Course Reader
·
John Rawls, selections
from A Theory of Justice.
Cambridge, MA: Belknap Press, 1971. Required Reading in the JSTOR
Database (available on-campus, or off-campus with TESC ID) ·
John
Rawls, “Justice as Fairness,” Philosophical
Review 67, no. 2 (April 1958), pp. 164-194. |
Saturday, April 19
Required Reading
in Course Reader
· Continue with earlier Rawls’ selections.·
John
Rawls, “The Political Conception of the Person,” from Political Liberalism. New
York: Columbia University Press, 1993. pp. 29-35.
Required Reading on the WWW “The Americans with
Disabilities Act” Overview of ADA as public policy, from The Center
for An Accessible Society http://www.accessiblesociety.org/topics/ada/index.htm “Americans with
Disabilities (ADA)” Brief Overview of ADA titles, from the U.S. Department of
Justice, Civil Rights Division, Disability Rights Section http://www.usdoj.gov/crt/ada/cguide.htm#anchor62335
http://www.ncd.gov/newsroom/publications/equality.html
Scroll down and click on Appendix E.
ADA, Section 102,
“Discrimination.” http://www.usdoj.gov/crt/ada/pubs/ada.txt
|
Some Things To Look For . . .
· Habermas’ account of the process whereby norms of behavior are justified · Habermas’ reasons for rejecting Rawls’ “Original Position” · Position/role of CID person, of close friends and family, and of professional caregivers at various phases of CID process · Particular identity experience and concerns of males in relation to CID, according to Charmaz and according to Hawking · Passages in Muras and Rose reading, and in Hawking reading, that illustrate identity concerns, and Fennell’s theoretical structure of phases |
Wednesday, April 23
Required Reading
in Course Reader
· Habermas, selections from Moral Consciousness and Communicative Action, translated by Christian Lenhardt and Shierry Weber Nicholsen. Cambridge, MA: MIT Press, 1991. ·
Charmaz, Kathy.
“Identity Dilemmas of Chronically Ill Men.” Sociological Quarterly, 35:2. (1994) pp. 269-288.
Required Reading on the WWW · Muras, Jane and PJ Rose http://nadc.ucla.edu/holdfiles/JaneMuras.htm “Reconstructing Reality/Reconstructing Myself Me and No Strings Attached Theatre of Disability” Or you may have to enter here: http://nadc.ucla.edu/library.cfm Click on the Disability, Arts and Culture link, then on name of article ·
Hawking, Stephen. “Disability: My Experience with ALS.” Available at http://www.hawking.org.uk/disable/dindex.html Optional
Reading in Academic Search Elite TESC Library Database · Livneh, Hanoch. “Psychosocial Adaptation to Chronic Illness and Disability: A Conceptual Framework.” Rehabilitation Counseling Bulletin, Vol. 44 No. 3 (Spring 2001). Pp151-161. · Livneh, Hanoch. “Psychosocial Adaptation to Cancer: The Role of Coping Strategies.” Journal of Rehabilitation. Vol 66. No. 2. (Apr/May/Jun 2000). Pp 40-49. · Livneh, Hanoch. “Psychosocial Adaptation to Cancer: The Role of Coping Strategies.” Journal of Rehabilitation. Vol 65. No. 3. (Jul/Aug/Sep 1999). Pp. 24-32. |
Week 5 Reading Negotiating Self and Identity
Some Things To Look For . . .
· Connections among these concepts in After Virtue: Virtues, Practices, Internal Goods, Narrative, Personal Identity · MacIntyre’s account of vulnerability and dependence in connection with goods and virtues · Various definitions of “self” in Kelly and Desjarlais. Who or what creates a “self,” according to each author? · What Hornbacher’s account has to say about self in relation to illness. · Co-existence in same person/situation, of health and CID. Is this more than a matter of redefinition of terms? Is health-in-illness different from health-in-disability? |
Wednesday, April 30
Required Reading in
Course Reader ·
MacIntyre. Selections from After
Virtue, 2nd ed. Notre
Dame: Notre Dame University Press, 1984. pp. 147-150, 162-4, 186-194,
216-223. ·
Mairs, Nancy. “On Having Adventures”. Plaintext. Tucson: University of Arizona Press, 1986. p. 3-7. ·
Lindsey, Elizabeth. “Health within Illness: Experience of Chronically
Ill/Disabled People.” Journal of
Advanced Nursing. 24. 1996. ·
Day, Lilli Jolgren. “Acceptance vs. Hope and the Pinocchio Factor.” The CFIDS Chronicle, March/April 1998.
The Chronic Fatigue and Immune Dysfunction Syndrome Association of America. Required Reading on the WWW
|
Required
Readings:
MacIntyre, Alasdair. Dependent Rational Animals. Chapters
1, 7-9.
in Course Reader ·
Kelly, Michael. “Self, Identity and Radical Surgery.” Sociology
of Health and Illness, 14:3 (1992). Pp. 390-415. ·
Desjarlais, Robert. “The Makings of Personhood in a Shelter for
People Considered Homeless and Mentally Ill.” Ethos. 27:4. (2000) pp. 466-489. · Hornbacher, Marya. Excerpt from Wasted: A Memory of Anorexia and Bulimia. In Kristen Couse, ed. Cure: Stories of Healing Mind and Body. New York: Marlow & Company [A Division of Avalon] and Balliett & Fitzgerald Inc. 2000. pp. 321-344. |
Some Things To Look For . . .
·
What differences do
vulnerability and dependence suggest, and how are they important for the
virtues? ·
Are people living with CID and
people not living with CID different from each other? In what ways are we
different? In what ways are we the same? Are disabled people different from
chronically ill people in ways that matter? |
Wednesday, May 7
Required Reading:MacIntyre. Dependent Rational Animals. Chapters 10-13. Required Reading in Course ReaderButler, Sandra and Barbara Rosenblum. Cancer in Two Voices. San Francisco: Spinsters Book Company, 1991. “Living in An Unstable Body” and “Living in My Changing Body – And Hers” Required Reading on the WWWGeorgina
Kleege http://www.ragged-edge-mag.com/0302/0302ft2.html Essay entitled “Charity Begins At Home” |
Some Things To Look For . . .
|
Wednesday, May 14
Required
Reading in Course Reader
·
Jackson, Laurie E.
“Understanding, Eliciting and Negotiating Clients’ Multicultural Health
Beliefs.” The Nurse Practitioner.
Vol. 18, No. 4. April 1993. · Kleinman, Arthur. Excerpts from The Illness Narratives: Suffering, healing and The Human Condition. Basic Books, 1988. ISBN 0-465-03204-4 pp. 128-129, 132-136, 239-244. · Lorde, Audre. Excerpt from Section III, “Breast Cancer: Power Vs. Prosthesis.” The Cancer Journals (special edition). San Francisco: Aunt Lute Books, 1997. |
Saturday, May 17
Required
Reading in Course Reader
· Smith, Janet Farrell. "Communicative Ethics in Medicine: The Physician-Patient Relationship," in From Feminism and Bioethics, ed. by Susan M. Wolf. Oxford: Oxford University Press, 1996. pp. 184-215. ·
Cushing, Pamela and Tanya Lewis. “Negotiating
Mutuality and Agency in Care-giving Relationships with Women with
Intellectual Disabilities.” Hypatia,
17:3 (Summer 2002). Pp. 173-193. Optional Reading on the WWW Blue, Amy V. “The Provision of Culturally Competent Health Care.” Available on the WWW at http://www.musc.edu/deansclerkship/rccultur.html . Optional Reading in
the Research Library Complete TESC
Library Database Ford, Maureen and Katherine Pepper-Smith. “Dividing the Difference: Intelligibility as an Element of Moral Education Under Oppression.” Journal of Moral Education, Vol. 27, No. 4. Dec. 1998. Pp. 445-463. |
Some Things To Look For . . .
|
Wednesday, May 21
Required
Reading in Course Reader
Goodman, Ellen. “A Pill
for What Haunts You.” The Boston Globe
Online, Editorials/Opinions section, 11/14/2002. Required Reading on the
WWW Tong, Rosemarie,
"Feminist Ethics", The Stanford Encyclopedia of Philosophy (Fall
2002 Edition), Edward N. Zalta (ed.). http://plato.stanford.edu/entries/feminism-ethics/ |
Some Things To Look For . . .
·
What is it to be a person? To
be human? Are these different? |
Wednesday, May 28
Required Reading on the WWW “The
Metamorphosis” (Die Verwandlung), Franz Kafka http://www.kafka.org/transl/english/metamorphosis.htm Required Reading in
the PROJECT MUSE TESC Library Database http://www.evergreen.edu/library/catalog/orSubject.htm Rowe, Michael. “Metamorphosis: Defending the Human.” Literature and Medicine 21:2. 2002. pp. 264-280. Once you are in Project Muse, you may need to go to the advanced search screen and enter each of these words on a separate line: metamorphosis, defending, human. Then hit the “search” button. Required
Reading in Course Reader
· Review MacIntyre, After Virtue, pp. 216-223. |
Saturday, May 31
Required
Reading in Course Reader
Brock, Dan W. “Justice and the Severely Demented
Elderly.” From Life and Death.
Cambridge: Cambridge University Press, 1993. pp. 356-387. |
No reading assignment -- Porfolios and papers due!