There are thousands of chronic illness and disability sites on the WWW. These links should help you get started! No endorsement is intended by inclusion here. (Please note also that these links are to sites on the Internet, not to articles in Evergreen’s library databases. To search the Evergreen databases, you must enter each database through the library’s website, and search the database using that specific database’s search tool.) The links below were last updated on March 30, 2003 and are organized into the following sections:

Abuse and Violence, and People with Disabilities

ADA and Public Policy

Art and Chronic Illness, Disability

Cartoons

Cultural/Ethnic Groups and Cross-Cultural Issues

Definitions of Disability

Definitions of Health and Wellness

Definitions of Illness

Disability and Illness in Washington State

Film and Chronic Illness, Disability

General Information and Link Lists

Health General Information

History

Literature (Fiction and Poetry) and Chronic Illness, Disability

Magazines and Journals On-line

Miscellaneous (includes Etiquette, Glossary)

Radio

Statistics

Theatre, Performance and Chronic Illness, Disability

 

 

 

Abuse and Violence, and People with Disabilities

Centers for Disease Control Fact Sheet

http://www.cdc.gov/ncipc/factsheets/disabvi.htm

 

Center for Research on Women with Disabilities, Baylor College of Medicine

http://www.bcm.tmc.edu/crowd/abuse_women/abuse_women.html

Links to information on several topics related to disabled women, including abuse.

 

VAWnet, a project of the National Resource Center on Domestic Violence

http://www.vaw.umn.edu/vawnet/disab.htm

Statistics and brief discussion.

 

 

ADA and Public Policy

Americans with Disabilities Act HOME PAGE, U.S. Department of Justice

http://www.usdoj.gov/crt/ada/adahom1.htm

A wealth of official information and links relating to the ADA. Includes personal and community stories, accounts of legal cases and settlement agreements, frequently-asked questions and answers, implementation guidelines, text of the law and regulations, etc.

 

Equality of Opportunity: The Making of the Americans with Disabilities Act

(National Council on Disability)

http://www.ncd.gov/newsroom/publications/equality.html

Interesting historical and explanatory information about the ADA. Note especially the links to Appendix E: Discrimination Diaries (some of the written testimony people submitted during the ADA process, to document the discrimination against people with disabilities) and Appendix F: Key Concepts in the ADA, very useful for understanding the definitions, assumptions and values underlying the ADA. The text of the law itself , as it passed in 1990, can be accessed at  http://www.usdoj.gov/crt/ada/pubs/ada.txt

 

The Center for An Accessible Society  ADA Stories

http://www.accessiblesociety.org/topics/ada/adachangedmylife.htm

Stories (and links to more) about changes the ADA has made in people’s lives.

 

National Institute on Disability and Rehabilitation Research -- ADA Technical Assistance Program

 http://www.adata.org/whatsada.html   

Click on the links in the text for relatively brief discussions of the structure of the ADA (synopsis of major sections of the Act), the definition of disability in the ADA, and the history of civil rights law related to disabilities from the 1970s through signing of the ADA in 1990. (Note: If the link above takes you directly to the history page, click on “About the ADA” in the list of links to the left for a menu.)

 

Disability Rights Section, Civil Rights Division, U.S. Department of Justice
http://www.usdoj.gov/crt/ada/cguide.htm

Brief discussions of U.S. disability rights laws.

 

21st Century Disability Think Tank on Overcoming the Most Significant Barriers to Independence

http://www.halftheplanet.org/departments/think_tank/table_of_contents.html

Report and issues papers from the first meeting of the 21st Century Disability Think Tank. The goal of the Think Tank is to create a roadmap for the disability civil rights movement and society to follow to achieve both total societal inclusion and enhanced pride and self-esteem in being members of and belonging to the community of disability.

 

 

 

Art and Chronic Illness, Disability

 

“Art, Disability & Expression” online exhibit from VSA arts http://www.vsarts.org/gallery/exhibits/disability/foreword.html

 

VSA Arts – An Organization and On-line Gallery

http://www.vsarts.org/index.html

VSA arts is an International organization that creates learning opportunities through the arts for people with disabilities. [VSA stands for Vision, Strength, and Artistic Expression.] Jean Kennedy Smith founded VSA in 1974 as an affiliate of The John F. Kennedy Center for the Performing Arts.

 

National Institute of Art and Disabilities (NIAD)

http://www.niadart.org/exhibits.htm

Gallery of images of art by CID people.

 

World Health Organization Photo Contest Winners

"Images of Health and Disability" 2002

http://www3.who.int/icf/photo_gallery/index.htm

 

United Nations: Human Rights and Disabled Persons

http://www.un.org/Photos/disabled.htm

United Nations photos of disabled people around the world.

 

Society for the Arts in Healthcare

http://www.societyartshealthcare.org/

Click on “Links to Arts in Healing Programs” for a list of arts and healing programs in the U.S. The “Traveling Exhibits” button leads to several images of art about illness.

 

Art and Healing Network

 http://artheals.org/index.html

A list of links to relevant organizations, artists, books, videos, etc. – including resources for artists working in this area.

 

The National Arts and Disability Center (NADC)

http://nadc.ucla.edu/

National information dissemination, technical assistance and referral center specializing in the field of arts and disability. The NADC is dedicated to promoting the full inclusion of children and adults with disabilities into the visual-, performing-, media, and literary-arts communities. At their links site, http://nadc.ucla.edu/links.htm ,  NADC provides connections to a number of sites featuring work by artists with disabilities and illness. 

 

National Disability Arts Forum (NDAF)

http://www.ndaf.org/menue.html

Organization based in the United Kingdom, with a mission of “creating equality of opportunity for disabled people in all aspects of the arts.”

 

Fiction, Film, Art Related to Medicine (and Illness and Disability) -- Annotated and Searchable Lists

http://endeavor.med.nyu.edu/lit-med/lit-med-db/topview.html

Art, film, and literature databases which list and contain reviews of works. Film organized by title; art by artist; literature by keyword, genre, individual annotator, title, era, author, selected ethnicities. Search feature. From the Arts and Medicine Project at the New York University School of Medicine.

 

Arts in Action

http://www.artsinaction.asn.au/home.htm

Arts in Action is the leading disability organization for arts and disability in South Australia. From their website:  “Our aim is to facilitate voice and expression for people with disabilities.” They also characterize the arts as “ the language of disability culture.”

 

 

Arts Therapy Links

 

Selected Internet Resources for the Arts and Disabilities

http://ericec.org/faq/arts-x.html

From ERIC Clearinghouse on Disabilities and Gifted Education

 

 

Cartoons

 

dizABLED

http://www.dizabled.com/

 

John Callahan

 http://www.animationworks.com.au/quads/johncallahan_main.htm

http://www.nelvana.com/pelswick/

 

 

 

Cultural/Ethnic Groups and Cross-Cultural Issues

Ethnomed

http://ethnomed.org/

EthnoMed provides medical and cultural information on specific immigrant and refugee groups, especially groups in the Seattle area. Designed to help healthcare providers.

 

University of Washington Medical Center

http://depts.washington.edu/pfes/cultureclues.html

Tip sheets for clinicians, designed to increase awareness about concepts and preferences of patients from the diverse cultures served by UWMC. Provide information about beliefs about illness, decision making, norms about touch, for seven cultures ranging from Albanian to Latino.

 

University of Washington Medical School

http://www.fammed.washington.edu/predoctoral/clerkship/sg_ccr_cc.html

Brief primer about cultural competency, for UW medical students on their Family Medicine Clerkship.

 

Checklists for Cultural Assessment (Queensland, Australia)

http://www.health.qld.gov.au/hssb/cultdiv/check/chk_list.pdf#Adobe

Queensland [Australia] Health’s publication containing checklists and guides for working with people from cultural and linguistic backgrounds other than one’s own.

 

American Student Medical Association

http://www.amsa.org/div/

Diversity and cultural competency resources for physicians-in-training, also useful for other healthcare professionals. The Cultural Competency in Medicine Project in a Box link lists some interesting “areas of dissonance” between people from different cultures, about one-third of the way down the page.

 

Cross Cultural Healthcare Program

http://www.xculture.org/index.cfm

Profiles of specific cultural communities in relation to providing healthcare to their members. Includes discussion of the specific community (for example, Cambodians) in the Seattle area. Link to profiles near bottom of the site’s home page.

 

University of California at San Francisco

http://medicine.ucsf.edu/resources/guidelines/culture.html

List of links relevant to multicultural and cross cultural issues in health care.

 

 

 

Definitions of Disability

Short paper by Deborah Kaplan, Director of the World Institute on Disability

http://www.accessiblesociety.org/topics/demographics-identity/dkaplanpaper.htm

 

National Institute on Disability and Rehabilitation Research -- ADA Definition of Disability

http://www.adata.org/whatsada-definition.html

 

National (information) Clearinghouse on Education and Training for people with disabilities

A recap of the World Health Organizations changing International Classification of Functioning and Disability (ICIDH-2), at the NCET site [National (information) Clearinghouse on Education and Training for people with disabilities], located in Australia.  

http://www.deakin.edu.au/tedca/ncet/information/resources/icidh.html

 

 

 

Definitions of Health and Wellness

Health and Wellness for People with Disabilities

 

http://www.ilru.org/healthwellness/healthinfo/index.html#Physical

FACT SHEET: Health, Wellness, & Disability:  Perspectives of Persons with Disability

(Note: A slightly different version of the fact sheet can be found at http://www.healthwellness.org/rrtclibrary/publications/library_study1brief.htm

if you are having trouble connecting to the ilru link.)

 

Health and Wellness links from Rehabilitation Research and Training Center (RRTC) on Health and Wellness

 http://www.healthwellness.org/sitemap.htm

For links on health and wellness for people with disabilities, first click on “Site Map” (upper right corner of screen), and then scroll down to Health Information, Definition of Health and Wellness” for links.

 

Healthy People 2010, Chapter 6: Disability and Secondary Conditions

http://www.healthypeople.gov/Document/HTML/Volume1/06Disability.htm

Healthy People 2010 is the third set of 10-year national health objectives overseen by the U.S. Department of Health and Human Services (HHS). The report as a whole contains a rich set of data and information about the state of US residents’ health, in a useful format. This chapter focuses on the health, well-being, and participation in life activities of disabled people. Links at the bottom of this web page take you to the rest of the report.

Health Disparities Encountered by Persons with Disabilities

http://www.cds.hawaii.edu/DSQ/_articles_pdf/2003/Winter/dsq_2003_Winter_06.pdf

Disabilities Studies Quarterly article on discrimination in health care relative to disabled persons.

 

 

The Concept of Wellness

 

University at Buffalo, The State University of New York

http://www.livingwell.buffalo.edu/well.shtml

Thought-provoking ideas about various aspects of wellness.

 

 

Definitions of Illness

“Defining Impairment and Disability: Issues At Stake” (Mike Oliver)

http://www.leeds.ac.uk/disability-studies/archiveuk/Oliver/exploring%20divide%20ch3.pdf

Chapter 3 in Exploring the Divide, edited by Colin Barnes and Geof Mercer, Leeds: The Disability Press, 1996, pp.29 -54.

 

Disability and Illness in Washington State

Washington State Department of Health

http://www.doh.wa.gov/HWS/CD.shtm

Link to the report The Health of Washington State: A statewide assessment of health status, health risks, and health care services, July 2002. Sections on infectious and chronic disease, injury and violence, and occupational health are particularly relevant.

 

 

 

Film and Chronic Illness, Disability

(See the Film page of this website for lists of informational and CID culture videos available at TESC and the Timberline Regional Library.)

 

Fiction, Film, Art Related to Medicine (and Illness and Disability) -- Annotated and Searchable Lists

http://endeavor.med.nyu.edu/lit-med/lit-med-db/topview.html

Art, film, and literature databases which list and contain reviews of works. Film organized by title; art by artist; literature by keyword, genre, individual annotator, title, era, author, selected ethnicities. Search feature. From the Arts and Medicine Project at the New York University School of Medicine.

 

disabilityfilms.co.uk

http://www.disabilityfilms.co.uk/

This site presents a detailed list of 2,500 feature films which involve in one way or another various disabilities.  Organized by disability and by film title.

 

Disability Studies On-line Magazine

http://www.disabilitystudies.com/videos.htm

List of some non-mainstream films or videos dealing with disability issues, compiled by Carrie Sandahl csandahl@mailer.fsu.edu.

 

 

 

General Information and Link Lists

The Center for An Accessible Society

http://www.accessiblesociety.org/index.shtml

http://www.accessiblesociety.org/topics/topicsindex.shtml  (topic index to links)

Funded by the National Institute on Disability and Rehabilitation Research, The Center for An Accessible Society is a national organization designed to focus public attention on disability and independent living issues by disseminating information developed through NIDRR-funded research to promote independent living. LINK TO CENSUS

 

National Council on Disability (NCD)

http://www.ncd.gov/

The National Council on Disability (NCD) is an independent federal agency which takes a civil rights and watchdog approach in making recommendations to the President and Congress on issues affecting Americans with disabilities. This site links you to NCD reports, and to “newsroom” and “what’s new” features that are useful in keeping up on some of what’s being said and what’s happening in the national public policy arena, related to disabilities.

 

Cornell University Rehabilitation Research and Training Center

http://www.ilr.cornell.edu/ped/dep/rrtc.html

Home page for the Rehabilitation Research and Training Center for Economic Research on Employment Policy for Persons with Disabilities (RRTC). Information, links and some statistics related to employment and disability.

 

DisabilityInfo.gov

http://www.disabilityinfo.gov/

Bills itself as “the comprehensive Federal website of disability-related government resources.”

 

Disability Information

http://www.abilityinfo.com/index.html

A website for students that are studying in the field of of disability, as well as professionals working within it. Link list.

 

Medline Plus (US National Library of Medicine and National Institutes of Health)

http://www.nlm.nih.gov/medlineplus/disabilitiesgeneral.html

Links to a range of interesting information.

 

Disability Resources on the Internet

http://www.disabilityresources.org/index.html

Awesome index to on-line resources from Disability Resources. 

 

Dimagine Link Page

http://www.dimagine.com/page8.html

A nice set of links from David Pitonyak, Ph.D., who has a consultation and training practice on disability issues.

 

 

 

 

Health General Information

U.S. Department of Health and Human Services

http://www.healthfinder.gov/

Developed by US federal agencies in 1997 to provide links to what the Department of Health and Human Services identifies as reliable sources of government and nonprofit health and human services information on the Internet.  healthfinder® links to information from over 1,800 health-related organizations.   

 

Memorial Sloan-Kettering Cancer Center

http://www.mskcc.org/mskcc/html/11570.cfm

This website provides information about using herbs, botanicals and other products in healthcare. Clicking on the button on the right of the page, under “Other resources” will take you to links to complementary and alternative medicine websites.

 

 

 

History

Disability Social History Project

http://www.disabilityhistory.org/exhibits.html

A community history project providing timelines, on-line exhibits, bibliographies and more.

 

History of Disability

http://www.disabilityresources.org/HISTORY.html

Links from Disability Resources Monthly.

 

Beyond Affliction: The Disability History Project

http://www.npr.org/programs/disability/

NPR’s  four hour documentary radio series about the shared experience of people with disabilities and their families since the beginning of the 19th century. This Web site includes excerpts, as well as many of the primary source documents - extended interviews, images, and texts- from which the on-air programs were developed.

 

 

 

 

Literature and Chronic Illness, Disability

Fiction, Film, Art Related to Medicine (and Illness and Disability) -- Annotated and Searchable Lists

http://endeavor.med.nyu.edu/lit-med/lit-med-db/topview.html

Art, film, and literature databases which list and contain reviews of works. Film organized by title; art by artist; literature by keyword, genre, individual annotator, title, era, author, selected ethnicities. Search feature. From the Arts and Medicine Project at the New York University School of Medicine.

 

 

 

Magazines and Journals On-line

Disability Studies Quarterly

http://www.cds.hawaii.edu/dsq/

Advertises itself as the first [academic] journal in the field of disability studies. Complete articles on-line.

 

Ragged Edge Magazine On-line

http://www.ragged-edge-mag.com/

Ragged Edge magazine continues the award-winning periodical, The Disability Rag. From the website: “We cover the disability experience in America -- what it means to be a crip living at the start of the 21st century.” Complete articles and essays on-line.

 

New Mobility Magazine

http://www.newmobility.com/magazine.cfm

Website contains short selections from the print magazine. Written by and for wheelchair users, New Mobility provides a forum for sharing life experience, for learning what really works in daily life, for networking and becoming part of a community.

 

Paralinks

http://www.paralinks.net/

An electronic magazine for people with spinal cord injury.

 

Disability Now

http://www.disabilitynow.org.uk/

A leading disability site in the United Kingdom, with news and feature articles, advice, adverts, links, an archive and a chat forum

 

Disability World

http://www.disabilityworld.org/index.htm

Disability World is a web-zine dedicated to advancing an exchange of information and research about the international independent living movement of people with disabilities. 

 

Mouth Magazine

http://www.mouthmag.com/

The on-line site for the edgy Mouth Magazine, “voice of the disability nation.” Subscribe to the print edition to get the full flavor – the on-line site is just a sample.

 

 

 

Miscellaneous (includes Etiquette, Glossary, Universal Design)

 

e d g e - education for disability and gender equity

http://www.disabledwomen.net/edge/curriculum/index.htm

The Education on Disability and Gender Equity (EDGE) website introduces students to core high school curriculum concepts using examples that educate and inform them about disability and gender.

 

Coming to Terms with Disabilities

http://codi.buffalo.edu/coming2terms.html

A compilation of vocabulary relating to visible and non-visible disabilities by the New York State Senate Select Committee on the Disabled.

 

Access and Opportunities: A Guide to Disability Awareness

http://www.vsarts.org/bestpractices/dag/index.html

VSA arts' Disability Awareness Guide is an informational tool for those who want to gain additional knowledge about disability and tips for speaking or writing with awareness and positive interactions with people with disabilities. Illness is included here as a “hidden disability.”

 

Disability Etiquette Handbook

http://www.sanantonio.gov/planning/disability_handbook/disability_handbook.asp?res=800&ver=true

The City of San Antonio, Texas Planning Department and the Disability Advisory Committee prepared this to enhance opportunities for persons with disabilities to pursue their careers and independent lifestyles.

 

Communicating With And About Individuals With Disabilities

http://nadc.ucla.edu/Communic.html

Bilbiography and links from the National Arts and Disability Center.

 

Trace Research & Development Center, College of Engineering, University of Wisconsin-Madison

http://trace.wisc.edu/world/

Tips and tools for making printed documents, web sites and consumer products accessible.

 

 

Radio

On A Roll

http://www.ican.com/channels/on_a_roll/index.cfm

Talk radio on life and disability.

 

Disability Radio Worldwide

http://www.independentliving.org/radio/index.html

Disability Radio Worldwide is a 30-minute weekly program broadcast by FM stations, radio reading services, over the Internet, and on shortwave radio. Weekly programs are distributed in the United States by the Pacifica Radio Network and can be heard on many local Pacifica affiliates.

 

 

 

 

Statistics

 

U.S. Census Surveys  Reports and Data on Disability

http://www.census.gov/hhes/www/disability.html

Includes employment, earnings, and disability information, and demographic information.

http://www.census.gov/hhes/www/disable/disabcps.html

Census disability-related information in tables

http://www.healthwellness.org/healthinfo/healthwelldef/healthinfo_frcensus.htm

Brief synopsis of recent U.S. Census findings on disability

 

The Center for An Accessible Society

http://www.accessiblesociety.org/topics/demographics-identity/nidrr-lrp-defs.htm#statlinks

At bottom of page, links to chartbooks containing charts, graphs and information on these topics:

Chartbook on Women and Disability in the United States Last updated: 07/21/99.

Chartbook on Work and Disability in the United States Last updated: 03/19/99

Chartbook on Disability in the United States  Last updated: 11/12/98.

 

Disability Statistics Center – University of California, San Francisco

http://dsc.ucsf.edu/default.html

Statistics and studies relevant to disability in the US.

 

National Center for Health Statistics – Fast Stats on Disability

http://www.cdc.gov/nchs/fastats/disable.htm

NCHS fast stats on disability (with links to comprehensive reports).

 

National Center for Health Statistics – Fast Stats on Minority Health

http://www.cdc.gov/nchs/fastats/minority.htm

NCHS fast stats on minority health (with links to comprehensive reports).

 

National Center for Health Statistics – Summary of Notifiable Diseases http://www2.cdc.gov/mmwr/summary.html

 Notifiable diseases are those healthcare personnel must report to local health departments, because the diseases are contagious or indicators of other significant threats to public health. There are links here to annual reports.

 

U.S. Centers for Disease Control -- Morbidity and Mortality Weekly Report (MMWR)

http://www.cdc.gov/mmwr/preview/mmwrhtml/mm5007a3.htm

Morbidity and Mortality Weekly Report  for February 23, 2001 [50(07);120-5], entitled “Prevalence of Disabilities and Associated Health Conditions Among Adults --- United States, 1999”. (Note: This article also appears on the WWW as a PDF file, at   http://www.cdc.gov/mmwr/PDF/wk/mm5007.pdf . The article is on pages 8-13.)

 

U.S. Centers for Disease Control -- Morbidity Tables

http://www.cdc.gov/mmwr/distrnds.html

Data for selected diseases reported by the 50 states, New York City, the District of Columbia, and the U.S. territories are collated and published weekly in the Morbidity and Mortality Weekly Report (MMWR).

 

U.S. Centers for Disease Control -- National Center for Chronic Disease Prevention and Health Promotion

http://www.cdc.gov/nccdphp/overview.htm

Overview and some stats on chronic disease in the US, with links to state-level information on specific diseases, funding, etc., and links to other publications on chronic disease. Among these links are issues of Chronic Disease Notes & Reports, the National Center’s newsletter for health professionals, at http://www.cdc.gov/nccdphp/cdnr.htm , and various publications and reports on chronic disease, at http://www.cdc.gov/nccdphp/publicat.htm .

 

United Nations Statistics Division – Reports on Disability

http://unstats.un.org/unsd/disability/default.asp

 

Washington State Department of Health

http://www.doh.wa.gov/HWS/CD.shtm

Link to the report The Health of Washington State: A statewide assessment of health status, health risks, and health care services, July 2002. Sections on infectious and chronic disease, injury and violence, and occupational health are particularly relevant.

 

World Health Organization Statistical Information

http://www.who.int/research/en/

Statistics on disease and death around the world.

 

World Health Organization Statistical Information System (WHOSIS)

http://www3.who.int/whosis/menu.cfm

The WHO Statistical Information System is a guide to health and health-related epidemiological and statistical information available from the World Health Organization, and elsewhere.

 

National Center for Education Statistics, US Department of Education

http://nces.ed.gov/surveys/npsas/table_library/

Tables of data on numbers of US undergraduate and graduate students who self-report disabilities and health problems. Once in the NCES Table Library, click on Data Search Tools, scroll down and click on “View Available Data Tables,” then on “Student,” then on “Miscellaneous.” In this screen, use the toggle switch and choose “Disabilities”. Hit “Go.”  There is also a somewhat outdated analysis report “Students with Disabilities in Postsecondary Education” at this website, at http://nces.ed.gov/pubsearch/pubsinfo.asp?pubid=1999187

 

 

 

 

Theatre, Performance and Chronic Illness, Disability

The DisAbility Project

http://www.disabilityproject.com/

The DisAbility Project is an ensemble engaging in conversation, writing, 
sound, movement and theatrical exercises to develop and perform material 
around the culture of disability.

 

National Theatre of the Deaf

http://www.ntd.org/

Theatre company’s web page, with additional Deaf culture links at

http://www.ntd.org/about_resources.htm .

 

 

URL for this webpage:   http://academic.evergreen.edu/curricular/ethicsanddifference

Links last updated on April 2 2003.