Selection Of Books In TESC Library Related To Chronic Illness,
Disability and Health
Note: These lists are a selection of books in the
Evergreen Library on topics related to several programs and courses on chronic
illness, disability and health. They are not bibliographies of every relevant
book or journal in the Evergreen Library! Remember that Evergreen students have
easy access to books in libraries throughout Washington State via the CASCADE
borrowing system. The Timberland Regional Library also circulates a number of
books on related topics. See the Film section of this webpage for annotated
lists of some relevant videos available through the Evergreen Library, TESC
Access Services, and Timberland Regional Library.
Activism, Philosophy
Art
Chronic Illness and Disability Experience and
History (Texts and Reference Books)
Compassion Fatigue, Secondary Traumatic
Stress
Disability, Illness Narrative (Analysis
and Theory)
Fiction and Poetry
Health Psychology
Personal Accounts
Sociology, Social Justice, Cultural Issues
Activism, Philosophy
- Adams, Maurianne, Lee
Anne Bell, Pat Griffin, eds. Teaching
for Diversity and Social Justice: A Sourcebook. New York: Routledge,
1997.
- Hillyer, Barbara. Feminism
and Disability. Norman, OK: University of Oklahoma Press, 1997.
- Linton, Simi. Claiming Disability: Knowledge and
Identity. New York
University Press;, 1998.
- Scarry,
Elaine. The
Body In Pain: The Making And Unmaking of The World. New York: Oxford
University Press, 1985.
- Shaw, Barrett. The Ragged Edge. Advocado Press,
1994.
- Sontag, Susan. Illness
as Metaphor and AIDS and Its Metaphors. New York:
Anchor Books (Doubleday), 1990.
- Wendell, Susan. The Rejected Body: Feminist
Philosophical Reflections on Disability. New York: Routledge, 1996.
Art
- Pope, Robert. Illness and Healing: Images of Cancer.
Hantsport, Nova Scotia: Lancelot. 1995. (paintings)
Chronic Illness and Disability
Experience and History (Texts and Reference Books)
·
Lubkin,
Ilene Morof. Chronic Illness: Impact and
Interventions. 4th ed. Sudbury, MA: Jones and Bartlett, 1998.
·
Marinelli,
Robert P. and Arthur E. Dell Orto, eds. The Psychological and Social Impact
of Disability. 4th ed. New York: Springer Publishing Co.,
1999.
·
Miller,
Judith Fitzgerald. Coping with Chronic
Illness: Overcoming Powerlessness. Philadelphia: F. A. Davis Co., 2000.
·
Rolland,
John S. Families, Illness, and Disability. Basic Books, 1994.
·
Longmore,
Paul K. and Lauri Umansky. The New Disability History: American Perspectives.
New York: New York UP, 2001.
Compassion Fatigue, Secondary
Traumatic Stress
·
Figley, Charles R.,
ed. Compassion Fatigue: Coping with Secondary Traumatic Stress Disorder in
Those who Treat the Traumatized. Brunner/Mazel, 1995.
·
Stamm, B. H. Secondary
Traumatic Stress: Self-Care Issues for Clinicians, Researchers, and Educators.
2nd ed. Maryland: Sidran
Press, 1999.
Disability, Illness Narrative
(Analysis and Theory)
- Epstein, Julia. Altered
Conditions: Disease, Medicine, and Storytelling. New York: Routledge, 1995.
- Frank, Arthur
W. The
Wounded Storyteller: Body, Illness, and Ethics. Chicago: University of
Chicago Press, 1995.
- Hawkins,
Anne Hunsaker. Reconstructing
Illness: Studies in Pathography, 2nd ed. West Lafayette,
IN: Purdue University Press, 1999.
- Kleinman,
Arthur. The Illness Narratives:
Suffering, Healing, and the Human Condition. New York: Basic Books,
1988.
- Mitchell,
David T. and Sharon L. Snyder, eds. The
Body and Physical Difference: Discourses of Disability. Ann Arbor: University
of Michigan Press, 1997.
Fiction and Poetry
Note: There
is so much fiction and, poetry related to illness, disability, and working with
people who are ill or disabled that I didn’t try to make a comprehensive inventory.
See the excellent annotated index below, from the Arts and Medicine Project at
the New York University School of Medicine, and then check to see if the works
are available through Evergreen or Cascade. Note that the index can be searched
by word or phrase, keyword, title, name of author, gender of author, physician
authors, authors of selected ethnicity, genre, era and annotator.
http://endeavor.med.nyu.edu/lit-med/lit-med-db/topview.html
Health
Psychology
- Sarafino, Edward P. Health Psychology: Biopsychosocial
Interactions. New York: Wiley, 2002.
-
Personal Accounts
Note: A few of these books are annotated in the Arts
and Medicine Project at the New York University School of Medicine, and then
check to see if the works are available through Evergreen or Cascade. Note that
the index can be searched by word or phrase, keyword, title, name of author,
gender of author, physician authors, authors of selected ethnicity, genre, era
and annotator.
http://endeavor.med.nyu.edu/lit-med/lit-med-db/topview.html
- Brodkey, Harold. This
Wild Darkness: The Story of My Death. New York: Henry
Holt, 1996.
- Brownworth,
Victoria A. and Susan Raffo. Restricted
Access: Lesbians on Disability. Seattle: Seal Press,
1999.
- Clare, Eli.
Exile
and Pride: Disability, Queerness, and Liberation. Cambridge, MA: South
End Press, 1999.
- Cousins, Norman. Anatomy
of An Illness As Perceived By The Patient: Reflections On Healing And
Regeneration.
New York: Norton, 1979.
- Donley, Carol and
Sheryl Buckley. The Tyranny of the
Normal. Kent, Ohio: Kent State
Univ. Press, 1996.
- Donley, Carol and
Sheryl Buckley. What's Normal?
Narratives of Mental and Emotional Disorders. Kent, Ohio: Kent State Univ. Press, 2000
- Dubus, Andre. Meditations from a Movable Chair. New
York: Knopf, 1998.
- Fadiman, Anne. The Spirit Catches You and You Fall
Down. New York: Noonday Press, 1997.
- Foster, Patricia. Minding The Body: Women Writers on Body
and Soul. New York: Doubleday/Anchor, 1994.
- Foster, Patricia and
Mary Swander. The Healing Circle:
Authors Writing of Recovery. New York: Penguin Putnam, 1998.
- Fries, Kenny, ed. Staring Back: The Disability Experience
from the Inside Out. New York: Penguin Putnam (Plume), 1997.
- Grealy, Lucy. Autobiography of a Face. Boston:
Houghton Mifflin, 1994.
- Jamison, Kay R. An Unquiet Mind. New York: A.A. Knopf, 1996.
- Kaysen, Susanna. Girl,
Interrupted. New York: Turtle Bay Books, 1993.
- Kenyon, Jane.
Otherwise:
New and Selected Poems. Saint Paul: Graywolf
Press, 1996.
- Lorde, Audre. The Cancer Journals. San Francisco:
Aunt Lute, 1997.
- Secundy,
Marian Gray, ed. Trials,
Tribulations, And Celebrations: African-American Perspectives On Health,
Illness, Aging, And Loss. Yarmouth, ME: Intercultural Press, 1992.
- Shaw, Barrett. The Ragged Edge. Advocado Press,
1994.
- Sidransky, Ruth. In
Silence: Growing Up Hearing In A Deaf World. New York: St. Martin's Press,
1990.
- Slater, Lauren. Welcome to My Country: A Therapist’s
Memoir of Madness. New York: Anchor Books (Bantam, Doubleday, Dell),
1996.
- Walker, Sue Brannan and
Rosaly Demaios Roffman. Life on the
Line. Mobile, AL: Negative Capability, 1992.
- Williams, Donna. Nobody
Nowhere : The Extraordinary Autobiography Of An Autistic. New
York: Times Books, 1992.
- Williams,
Terry Tempest. Refuge: An Unnatural
History of Family and Place. New York: Pantheon
Books, 1991.
- Zola, Irving Kenneth. Ordinary Lives: Voices of Disability
and Disease. Cambridge, MA: Applewood, 1982.
Sociology, Social Justice,
Cultural Issues
- Adams, Maurianne, Lee
Anne Bell, Pat Griffin, eds. Teaching
for Diversity and Social Justice: A Sourcebook. New York: Routledge,
1997.
·
Freund,
Peter and Meredith B. McGuire. Health, Illness, and the Social Body: A
Critical Sociology. 3rd ed. Upper Saddle River, NJ; Prentice
Hall, 1999.
·
Hillyer,
Barbara. Feminism and Disability. Norman, OK: University of Oklahoma
Press, 1997.
- Kleinman,
Arthur, Veena Das, and Margaret Lock, eds. Social Suffering. Berkeley: University of
California Press, 1997.
- Morris, David
B. Illness
And Culture in the Postmodern Age. Berkeley: University of California Press,
1998.
- Purnell, Larry D. and Betty J. Paulanka. Transcultural Health Care: A Cultural
Competency Approach. Philadelphia: F. A. Davis, 1998.
- Scarry, Elaine. The Body In
Pain: The Making And Unmaking of The World. New
York: Oxford University Press, 1985.
- Shaw, Barrett. The
Ragged Edge. Advocado Press, 1994.
- Sontag, Susan. Illness as Metaphor and AIDS and
Its Metaphors. New York: Anchor Books (Doubleday),
1990.
- Wendell, Susan. The
Rejected Body: Feminist Philosophical Reflections on Disability. New
York: Routledge, 1996.
URL for this webpage: http://academic.evergreen.edu/curricular/ethicsanddifference
Last updated March 30 2003